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Research Case studies

Getting Sorted: Created by Young People for Young People

Getting Sorted gives vital support and advice to young people living with long term health conditions in Yorkshire and the Humber. This scheme is based on workshops that capture the key issues raised by young people aged 12 to 17, living with diabetes and asthma.

Empowering young people

The project is endorsed by the Department of Health and will support the development of a national programme. The groups give young people an opportunity to share their experiences of living with their condition and focus on the impact on the young person’s life.

The workshops help facilitate young people to develop strategies and approaches to living with their condition. This is based on the idea that it is helpful for young people to take responsibility for their condition, and consequently for the rest of their lives.

The three key principles are:

  1. Self efficacy – young people should be encouraged to take responsibility for their lives and conditions.
  2. Empowerment – young people should be facilitated in developing knowledge and skills that will allow them to take responsibility for themselves.
  3. Engagement – young people should take responsibility for their lives and become fully engaged in the process of managing their condition in a pro-active way.

The workshops are delivered by trained young facilitators who themselves have the condition. This structure is based on evidence that self management courses could be run more effectively by people who had the same personal experiences.

Practice informing research

Getting Sorted is supported by a research project: ‘Join us on our Journey’, which is being funded by NHS Diabetes over three years. The aim of which is to research and disseminate the impact and findings from Getting Sorted. Children and young people are involved as co-researchers and are already disseminating findings to medical professionals at conferences and seminars.

Awards and sector recognition

Getting Sorted’s major achievements include, project leader Liz Webster winning gold in the Child Health Category for her research at the Nursing Times Awards, 2007. The team were award winners at the prestigious NHS Medipex finals 2010, and secured two valuable bids from the prominent NHS Yorkshire and the Humber Regional Innovation Fund, 2009/10.

The project is cited on the Diabetes UK website and was described as an ‘exemplar of good practice’ in two NHS Yorkshire and the Humber SHA Reports, 2008. The project was also cited in the NHS Yorkshire and the Humber ‘Healthy Ambitions’ that sets out the work that has been undertaken to take forward the review established by Lord Darzi.

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