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Centre for Psychological Research

Empowering women of childbearing age with cancer

The Cancer, Fertility and Me study empowers women with cancer to make informed decisions about fertility preservation.

Empowering women of childbearing age with cancer

the challenge

Professor Georgina Jones, Professor of Health Psychology at Leeds Beckett University, is working on developing tools that support patients to make difficult treatment decisions. She is currently leading the Cancer, Fertility & Me study, which addresses the challenge of fertility preservation in women of childbearing age diagnosed with cancer.

One of the consequences of cancer treatment can be a loss of fertility and it is difficult for women with cancer to make decisions on longer-term lifestyle planning around starting a family while simultaneously addressing the immediate concerns of cancer therapy. Usually, patients must make a decision on preserving their fertility within days. The challenge for these patients and the clinicians advising them is taking a decision that reflects their plans for the future, at very short notice, while bearing the stress of their cancer diagnosis.

The Approach

The Cancer, Fertility & Me study is designed to support female patients with a cancer diagnosis in making informed decisions around preserving their fertility before starting treatment, which can severely affect their ability to have a biological child in the future. This is done through a patient decision aid resource which has been developed and put into practice initially for female patients aged 16-45, but a version targeted for the 16-25 age group soon followed, all funded by Yorkshire Cancer Research.

The resource addresses the psychological consequences of loss of fertility due to cancer treatment and the added pressures of making a decision on fertility preservation at very short notice. Professor Jones and the team on the Cancer, Fertility & Me project are working to develop a patient decision aid for parents of children with a cancer diagnosis and also for teenage boys and men.

Our aim is for patients to feel better supported and more informed at the time of planning their cancer treatment and before referral to the fertility expert. It should enable women to make better informed decisions, have more focused consultations with the fertility experts and have a better opportunity to ask the right questions at the right time during the fertility consultation.

The Impact

The Cancer, Fertility & Me patient decision aid in booklet version is now available to all female cancer patients, free of charge, through a wide range of academic, clinical and professional organisations and local and national charities. It has been endorsed by the National Institute for Health and Care Excellence (NICE) and the International Patient Decision Aids Standards Committee, achieving full marks as a resource to support patient decision-making. It is currently being translated into French, German, Italian, Spanish and Dutch, which will make it accessible throughout Europe. This will allow cancer patients outside of the UK to receive the expert support and guidance they need to make the best decision on fertility preservation.

Cancer, Fertility and Me | Patient Decision Aid

Download the booklet

The Cancer, Fertility & Me website has had 20,000 visitors since its launch and hundreds of patients and clinicians have spoken about how much the resource has helped them. During the study, Professor Jones and her team worked with patients to assess how important fertility preservation is and the hope it gives to people diagnosed with cancer. The decision aid strengthens that hope and, in many cases, makes it possible for patients who are not aware fertility preservation is an option, or who did not previously have access to enough information to support their decision.

  1. "I so wish I had been offered these options when I was first diagnosed. The CFM booklet will give women the power to help make the best decisions for themselves in conjunction with their medical teams. I hope it is adopted by all hospitals."

    Anon, cancer patient

  2. "It is good to have a powerful tool to guide us and the oncologists on the best and most appropriate fertility preservation option for our patients."

    Healthcare professional

  3. "I’ve directed them [patients] to the Cancer, Fertility and Me website before their telephone appointment with me and it has definitely helped with the discussion."

    Healthcare professional

  • Abhyankar, P., Bekker, H. L., Summers, B. A., & Velikova, G. (2011). Why values elicitation techniques enable people to make informed decisions about cancer trial participation. Health Expectations14, 20-32. doi: 10.1111/j.1369-7625.2010.00615.x
  • Abhyankar, P., Volk, R. J., Blumenthal-Barby, J., Bravo, P., Buchholz, A., Ozanne, E., Colins Vidal, D., Col, N., & Stalmeier, P. (2013). Balancing the presentation of information and options in patient decision aids: an updated review. BMC medical informatics and decision making13(2), S6. doi: 10.118 6/1472-6947-13-S2-S6
  • Abir, R., Ben-Aharon, I., Garor, R., Yaniv, I., Ash, S., Stemmer, S. M., Ben-Haroush, A., Freud, E., Kravarusic, D., Sapir, O., & Fisch, B. (2016). Cryopreservation of in vitro matured oocytes in addition to ovarian tissue freezing for fertility preservation in paediatric female cancer patients before and after cancer therapy. Human Reproduction, 31, 750–762. doi: 10.1093/humrep/dew007
  • Adams, E., Hill, E., & Watson, E. (2013). Fertility preservation in cancer survivors: a national survey of oncologists’ current knowledge, practice and attitudes. British journal of cancer108(8), 1602. doi: 10.1038/bjc.2013.139
  • Agarwal, A., Ranganathan, P., Kattal, N., Pasqualotto, F., Hallak, J., Khayal, S., & Mascha, E. (2005). Fertility after cancer: A prospective review of assisted reproductive outcome with banked semen specimens. Fertility and Sterility, 81, 342–348. doi: 10.1016/j.fertnstert.2003.07.021
  • Agorastos, T., Zafrakas, M., & Mastrominas, M. (2009). Long-term follow-up after cervical cancer treatment and subsequent successful surrogate pregnancy. Reproductive Biomedicine Online, 19, 250–251. doi: 10.1016/S1472-6483(10)60080-6
  • Ahmad, A. S., Ormiston-Smith, N., & Sasieni, P. D. (2015). Trends in the lifetime risk of developing cancer in Great Britain: comparison of risk for those born from 1930 to 1960. British Journal of Cancer112(5), 943. doi: 10.1038/bjc.2014.606
  • Ajala, T., Rafi, J., Larsen-Disney, P., & Howell, R. (2010). Fertility preservation for cancer patients: a review. Obstetrics and Gynecology International2010. doi: 10.1155/2010/160386
  • Al-Asari, S., & Abduljabbar, A. (2012). Laparoscopic ovarian transposition before pelvic radiation in rectal cancer patient: Safety and feasibility. Annals of Surgical Innovation and Research, 6, 9. doi: 10.1186/1750-1164-6-9
  • Al-Badawi, I. A., Al-Aker, M., AlSubhi, J., Salem, H., Abduljabbar, A., Balaraj, K., & Munkarah, A. (2010). Laparoscopic ovarian transposition before pelvic irradiation: A Saudi tertiary centre experience. International Journal of Gynaecological Cancer, 20, 1082–1086. doi: 10.1111/IGC.0b013e3181e2ace5
  • Anderson, R. A., & Cameron, D. A. (2011). Pretreatment serum anti-mullerian hormone predicts long term ovarian function and bone mass after chemotherapy for early breast cancer. The Journal of Clinical Endocrinology and Metabolism, 96, 1336–1343. doi: 10.1210/jc.2010-2582
  • Anderson, R. A., Mitchell, R. T., Kelsey, T. W., Spears, N., Telfer, E. E., & Wallace, W. H. (2015). Cancer treatment and gonadal function: Experimental and established strategies for fertility preservation in children and young adults. The Lancet Diabetes and Endocrinology, 3, 556–567. doi: 10.1016/S2213-8587(15)00039-X
  • Anderson, R. A., & Davies, M. C. (2016). Preserving fertility in girls and young women with cancer. The British Medical Journal, 355. doi: 10.1136/bmj.i6145 
  • Appel, J. M., Nielsen, D., Zerahn, B., Jensen, B. V., & Skagen, K. (2007). Anthracycline-induced chronic cardiotoxicity and heart failure. Acta Oncologica, 46, 576–580. doi: 10.1080/02841860601156165
  • Arian, S. E., Goodman, L., Flyckt, R. L., & Falcone, T. (2017). Ovarian transposition: a surgical option for fertility preservation. Fertility and Sterility107(4), e15. doi: 10.1016/j.fertnstert.2017.01.010
  • Armuand, G. M., Rodriguez-Wallberg, K. A., Wettergren, L., Ahlgren, J., Enblad, G., Höglund, M., & Lampic, C. (2012). Sex differences in fertility-related information received by young adult cancer survivors. Journal of Clinical          Oncology30(17), 2147-2153. doi: 10.1200/JCO.2011.40.6470
  • Armuand, G. M., Wettergren, L., Rodriguez-Wallberg, K. A., & Lampic, C. (2015). Women more vulnerable than men when facing risk for treatment-induced   infertility: a qualitative study of young adults newly diagnosed with cancer. Acta Oncologica54(2), 243-252. doi: 10.3109/0284186X.2014.948 573
  • Azim, A. A., Costantini-Ferrando, M., & Oktay, K. (2008). Safety of fertility preservation by ovarian stimulation with letrozole and gonadotropins in patients with breast cancer: a prospective controlled study. Journal of Clinical Oncology26(16), 2630-2635. doi: 10.1200/JCO.2007.14.8700
  • Balthazar, U., Fritz, M. A., & Mersereau, J. E. (2011). Fertility preservation: a pilot study to assess previsit patient knowledge quantitatively. Fertility and Sterility95(6), 1913-1916. doi: 10.1016/j.fertnstert.2011.02.016
  • Balthazar, U., Deal, A. M., Fritz, M. A., Kondapalli, L. A., Kim, J. Y., & Mersereau, J. E. (2012). The current fertility preservation consultation model: are we adequately informing cancer patients of their options? Human Reproduction27(8), 2413-2419. doi: 10.1093/humrep/des188
  • Barcroft, J., Dayoub, N., & Thong, K. J. (2013). Fifteen year follow-up of embryos cryopreserved in cancer patients for fertility preservation. Journal of Assisted Reproduction and Genetics, 30, 1407–1413. doi: 10.1007/s10815-013-0024-z
  • Barton, S. E., Politch, J. A., Benson, C. B., Ginsburg, E. S., & Garguilo, A. R. (2011).Transabdominal follicular aspiration for oocyte retrieval in patients with ovaries inaccessible by transvaginal ultrasound. Fertility and Sterility, 95, 1773–1776. doi: 10.1016/j.fertnstert.2011.01.006
  • Barton, S. E., Najita, J.S., Ginsburgh, E.S., Leisenring, W.M., Stovall, M., Weathers,  R. E., Sklar, C. A., Robison, L. L., & Diller, L. (2013). Infertility, infertility treatment, and achievement of pregnancy in female survivors of childhood cancer: A report from the Childhood Cancer Survivor Study cohort. The Lancet Oncology, 14, 873–881. doi: 10.1016/S1470-2045(13)70251-1
  • Bastings, L., Baysal, Ö., Beerendonk, C. C. M., IntHout, J., Traas, M. A. F., Verhaak, C. M., Braat, D. D. M., & Nelen, W. L. D. M. (2014). Deciding about fertility preservation             after specialist counselling. Human Reproduction29(8), 1721-1729. doi: 10.1093/humrep/deu136
  • Bath, L. E., Critchley, H. O., Chambers, S. E., Anderson, R. A., Kelnar, C. J., & Wallace, W. H. (1999). Ovarian and uterine characteristics after total body irradiation in childhood and adolescence: Response to sex steroid replacement. British Journal of Obstetrics and Gynaecology, 106, 1265–1272. doi: 10.1111/j.1471-0528.1999.tb08180.x
  • Baysal, Ö., Bastings, L., Beerendonk, C. C. M., Postma, S. A. E., IntHout, J., Verhaak, C. M., Braat, D. D. M., & Nelen, W. L. D. M. (2015). Decision-making in female fertility preservation is balancing the expected burden of fertility preservation treatment and the wish to conceive. Human Reproduction30(7), 1625-1634.
  • Bekker, H., Thornton, J. G., Airey, C. M., Connelly, J. B., Hewison, J., Robinson, M. B., Lilleyman, J., MacIntosh, M., Maule, A. J., Michie, S., & Pearman, A. D. (1999). Informed decision making: an annotated bibliography and systematic review. Health Technology Assessment3(1), 1-156.
  • Bekker, H. L., Hewison, J., & Thornton, J. G. (2003). Understanding why decision aids work: linking process with outcome. Patient Education and Counselling50(3), 323-329. doi: 10.1016/S0738-3991(03)00056-9
  • Bekker, H. L., Hewison, J., & Thornton, J. G. (2004). Applying decision analysis to facilitate informed decision making about prenatal diagnosis for Down syndrome: a randomised controlled trial. Prenatal Diagnosis: Published in      Affiliation With the International Society for Prenatal Diagnosis24(4), 265-275. doi: 10.1002/pd.851
  • Bekker, H. L., Winterbottom, A. E., Butow, P., Dillard, A. J., Feldman-Stewart, D., Fowler, F. J., Jibaja-Weiss, M. L., Shaffer, V. A., & Volk, R. J. (2013). Do personal stories make patient decision aids more effective? A critical review of theory and evidence. BMC medical informatics and decision making13(2), S9. doi: 10.1186/1472-6947-13-S2-S9
  • Blakely, L. J., Buzdar, A. U., Lozada, J. A., Shullaih, S. A., Hoy, E., Smith, T. L., & Hortobagyi, G. N. (2004). Effects of pregnancy after treatment for breast carcinoma on survival and risk of recurrence. Cancer100(3), 465-469. doi: 10.1002/cncr.11929
  • Boling, W., Fouladi, R. T., & Basen-Engquist, K. (2003). Health-related quality of life in gynecological oncology: instruments and psychometric properties. International Journal of Gynecologic Cancer13(1), 5-14. doi: 10.1136/ijgc-00009577-200301000-00002
  • Borini, A., Lagalla, C., Bonu, M. A., Bianchi, V., Flamigni, C., & Coticchio, G. (2006). Cumulative pregnancy rates resulting from the use of           fresh and frozen oocytes: 7 years’ experience. Reproductive Biomedicine Online, 12, 481–486.           doi: 10.1016/S1472-6483(10)62002-0
  • Bramswig, J. H., Riepenhausen, M., & Schellong, G. (2015). Parenthood in adult female survivors treated for Hodgkin’s lymphoma during childhood and adolescence: A prospective, longitudinal study. The Lancet Oncology, 16, 667–675. doi: 10.1016/S1470-2045(15)70140-3
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology3(2), 77-101. doi: 10.1191/1478088706qp063oa
  • Breast Cancer Care. Standards of Care for Younger Women; Results from the Survey of Healthcare Professionals (2014). [online]. https://www.breastcancercare.org.uk/about-us/media/press-releases/approximately-5000-breast-   cancer-patients-missing-out-fertility-care (26 January 2016, date last accessed).
  • Breeman, S., Cotton, S., Fielding, S., & Jones, G. T. (2015). Normative data for the hospital anxiety and depression scale. Quality of Life Research24(2), 391-398. doi: 10.1007/s11136-014-0763-z
  • Breitsameter, C. (2010). Medical decision-making and communication of risks: an ethical perspective. Journal of Medical Ethics36(6), 349-352. doi: 10.1136/jme.2009.033282
  • British Fertility Society. (2003). A strategy for fertility services for survivors of childhood cancer. Human Fertility, 6, 1–40. doi: 10.1080/14647703123313 69133
  • Briscoe, S. (2015). Web searching for systematic reviews: a case study of reporting standards in the UK Health Technology Assessment programme. BMC Research Notes8(1), 153. doi: 10.1186/s13104-015-1079-y
  • Broadbent, E., Petrie, K. J., Main, J., & Weinman, J. (2006). The brief illness perception questionnaire. Journal of Psychosomatic Research60(6), 631-        637. doi: 10.1016/j.jpsychores.2005.10.020
  • Cakmak, H., Katz, A., Cedars, M. I., & Rosen, M. P. (2013). Effective method for emergency fertility preservation: Random-start controlled ovarian stimulation. Fertility and Sterility, 100, 673–680. doi: 10.1016/j.fertnstert.2013.07.1992
  • Canada, A. L., & Schover, L. R. (2012). The psychosocial impact of interrupted childbearing in long‐term female cancer survivors. PsychoOncology21(2), 134-143. doi: 10.1002/pon.1875
  • Cancer Research UK. (2014). Cancer Statistics for the UK. Retrieved from http://www.cancerresearchuk.org/health-professional/cancer-statistics
  • Cancer Research UK. Cancer statistics for the UK. (2016).
  • Cardozo, E. R., Thomson, A. P., Karmon, A. E., Dickinson, K. A., Wright, D. L., & Sabatini, M. E. (2015). Ovarian stimulation and in-vitro fertilization outcomes of cancer patients undergoing fertility preservation compared to age matched controls: A 17-year experience. Journal of Assisted Reproduction and Genetics, 32, 587–596. doi: 10.1007/s10815-015-0428-z
  • Cardoza, F., Loibl, S., Pagani, O., Graziottin, A., Panizza, P., Martincich, L., Gentilini, O., Peccatori, F., Fourquet, A., Delaloge, S., Marotti, L., Penault-Llorca, F., Kotti-Kitromilidou, A. M., Rodger, A., & Harbeck, N. (2012). The European society of breast cancer specialists recommendations for the management of        young people with breast cancer. European Journal of Cancer, 48, 3355–            3377. doi: 10.1016/j.ejca.2012.10.004
  • Centre for Reviews Dissemination. Systematic Reviews: CRD's Guidance for Undertaking Reviews in Healthcare. York: Centre for Reviews & Dissemination; 2009. Available from: https://www.york.ac.uk/media/crd/Systematic_Reviews.pdf. Accessed 2 Sept 2018.
  • Chow, E. J., Stratton, K. L., Leisenring, W. M., Oeffinger, K. C., Sklar, C. A., Donaldson, S. S., Ginsberg, J. P., Kenney, L. B., Levine, J. M., Robison, L. L., Shnorhavorian, M., Stovall, M., Armstrong, G. T., & Green, D. M. (2016). Pregnancy after chemotherapy in male and female survivors of childhood cancer treated between 1970 and 1999: A report from the childhood cancer             survivor study cohort. The Lancet Oncology, 17, 567–576. doi: 10.1016/S1470-2045(16)00086-3
  • Clinical Oncology Society of Australia. (2014). Fertility preservation for AYAs diagnosed with cancer: Guidance for health professionals. Retrieved from http://wiki.cancer.org.au/australia/COSA:AYA_cancer_fertility_preservation/Introduction
  • ClinicalTrials.gov. Pregnancy outcome and safety of interrupting therapy for women with endocrine responsive breast cancer (POSITIVE). (identifier NCT02308085). (2014).
  • Cobo, A., & Diaz, C. (2011). Clinical application of oocyte vitrification: A systematic review and meta-analysis of randomized controlled trials. Fertility and Sterility, 96, 277–285. doi: 10.1016/j.fertnstert.2011.06.030
  • Cobo, A., Garcia-Velasco, J. A., Domingo, J., Remohí, J., & Pellicer, A. (2013). Is vitrification of oocytes useful for fertility preservation for age-related fertility decline and in cancer patients? Fertility and Sterility, 99, 1485–1495. doi: 10.1016/j.fertnstert.2013.02.050
  • Cobo, A., García-Velasco, J. A., Coello, A., Domingo, J., Pellicer, A., & Remohí,   J. (2016). Oocyte vitrification as an efficient option for elective fertility      preservation. Fertility and Sterility, 105, 755–764. doi: 10.1016/j.fertnstert.2015.11.027
  • Collaboration for Environmental Evidence. Guidelines and Standards for Evidence Synthesis in Environmental Management. Version 5.0. 2018 [Accessed 2 Sept 2018]. Available from http://www.environmentalevidence.org/guidelines/table-of-contents
  • Connell, S., Patterson, C., & Newman, B. (2006). A qualitative analysis of reproductive issues raised by young Australian women with breast cancer. Health Care for Women International27(1), 94-110. doi: 10.1080/07399330500377580
  • Corney, R., Puthussery, S., & Swinglehurst, J. (2014). The stressors and vulnerabilities of young single childless women with breast cancer: a qualitative study. European Journal of Oncology Nursing18(1), 17-22. doi: 10.1016/j.ejon.2013.10.003
  • Corney, R. H., & Swinglehurst, A. J. (2014). Young childless women with breast cancer in the UK: a qualitative study of their fertility‐related experiences, options, and the information given by health professionals. Psycho‐        Oncology23(1), 20-26. doi: 10.1002/pon.3365
  • Cooper, C., Booth, A., Britten, N., & Garside, R. (2017). A comparison of results of empirical studies of supplementary search techniques and recommendations in review methodology handbooks: a methodological review. Systematic Reviews6(1), 234. doi: 10.1186/s13643-017-0625-1
  • Coulter, A., & Collins, A. (2011). Making shared decision-making a reality. London: King's Fund.
  • Coulter, A., Entwistle, V., & David, G. (1998). Informing patients: an assessment of the quality of patient information materials.
  • Coulter, A., Stilwell, D., Kryworuchko, J., Mullen, P. D., Ng, C. J., & van der Weijden, T. (2013). A systematic development process for patient decision aids. BMC Medical Informatics and Decision Making13(2), S2. doi: 10.1186/1472-6947-13-S2-S2
  • Coulter, A. M., Harter, M., Moumjid-Ferdjaoui, N., Perestelo-Perez, L., & Van Der Weijden, T. (2015). European experience with shared decision making. International Journal of Person Centred Medicine5(1).
  • Couper, M. P., Singer, E., Levin, C. A., Fowler Jr, F. J., Fagerlin, A., & Zikmund-Fisher, B. J. (2010). Use of the Internet and ratings of information sources for medical decisions: results from the DECISIONS survey. Medical Decision Making30(5_suppl), 106-114. doi: 10.1177/0272989X10377661
  • Crawford, J. R., Henry, J. D., Crombie, C., & Taylor, E. P. (2001). Normative data for the HADS from a large non‐clinical sample. British Journal of Clinical Psychology40(4), 429-434. doi: 10.1348/014466501163904
  • Crawshaw, M. A., Glaser, A. W., Hale, J. P., & Sloper, P. (2009). Male and female experiences of having fertility matters raised alongside a cancer diagnosis    during the teenage and young adult years. European Journal of Cancer Care18(4), 381-390. doi: 10.1111/j.1365-2354.2008.01003.x
  • Critchley, H. O., Wallace, W. H., Shalet, S. M., Mamtora, H., Higginson, J., & Anderson, D. C. (1992). Abdominal irradiation in childhood; the potential for pregnancy. British Journal of Obstetrics and Gynaecology, 99, 392–394.        doi: 10.1111/j.1471-0528.1992.tb13755.x
  • Daraï, E., Fauvet, R., Uzan, C., Gouy, S., Duvillard, P., & Morice, P. (2013). Fertility and borderline ovarian tumor: A systematic review of conservative      management, risk of recurrence and alternative options. Human Reproduction Update, 19, 151–166. doi: 10.1093/humupd/dms047
  • Davies, C., Pan, H., Godwin, J., Gray, R., Arriagada, R., Raina, V., Abraham, M., Medeiros Alencar, V. H., Badran, A., Bonfill, X., Bradbury, J., Clarke, M., Collins, R., Davis, S. R., Delmestri, A., Forbes, J. F., Haddad, P., Hou, M-F.,& Peto, R. (2013). Long-term effects of continuing adjuvant tamoxifen to 10         years versus stopping at 5 years after diagnosis of oestrogen receptor-positive breast cancer: ATLAS, a randomised trial. The Lancet, 381, 805–816. doi: 10.1016/S0140-6736(12)61963-1
  • De Bruin, M. L., Huisbrink, J., Hauptmann, M., Kuenen, M. A., Ouwens, G. M., Van't Veer, M. B., Aleman, B. M. P., & van Leeuwen, F. E. (2008). Treatment-related risk factors for premature menopause following Hodgkin lymphoma. Blood, 111, 101–108. doi: 10.1182/blood-2007-05-090225
  • Del Mastro, L., Ceppi, M., Poggio, F., Bighin, C., Peccatori, F., Demeestere, I., Levaggi, A., Giraudi, S., Lambertini, M., D’Alonzo, Canavese, G., Pronzato,            P., & Bruzzi, P. (2014). Gonadotropin-releasing hormone analogues for the prevention of chemotherapy-induced premature ovarian failure in cancer women: Systematic review and meta-analysis of randomized trials. Cancer Treatment Reviews, 40, 675–683. doi: 10.1016/j.ctrv.2013.12.001
  • Demeestere, I., Simon, P., Dedeken, L., Moffa, F., Tsépélidis, S., Brachet, C., Delbaere, A., Devreker, F., & Ferster, A. (2015). Live birth after autograft of ovarian tissue cryopreserved during childhood. Human Reproduction, 30, 2107–2109. doi: 10.1093/humrep/dev128
  • Demeestere, I., Brice, P., Peccatori, F. A., Kentos, A., Dupuis, J., Zachee, P., Casasnovas, O., Van Den Neste, E., Dechene, J., De Maertelaer, V., Bron, D., & Englert, Y. (2016). No evidence for the benefit of gonadotropin-releasing hormone agonist in preserving ovarian function and fertility in lymphoma survivors treated with chemotherapy: Final long-term report of a prospective randomized trial. Journal of Clinical Oncology, 22, 2568–2574. doi: 10.1200/J CO.2015.65.8864
  • Denschlag, D., Wolff, M., Amant, F., Kesic, V., Reed, N., Schneider, A., & Rodolakis, A. (2010). Fertility preservation in borderline ovarian neoplasm (tumor of low malignant potential): Ovarian stimulation and oocyte retrieval after conservative surgery. Gynecologic and Obstetric Investigation, 70, 160–        165. doi: 10.1159/000316264
  • Department of Health (DOH). Liberating the NHS: No Decision About Me Without Me (2010). [online]. https://www.gov.uk/government/uploads/system/uploads/attachment_datafile/216980/Liberating-the-NHS-No-decision-about-me-without-me-Government-response.pdf (11 January 2017, date last accessed).
  • De Vos, M., Smitz, J., & Woodruff, T. K. (2014). Fertility preservation in women with cancer. The Lancet, 384, 1302–1310. doi: 10.1016/S0140-6736(14)60834-5
  • Di Santo, M., Tarozzi, N., Nadalini, M., & Borini, A. (2012). Human sperm cryopreservation: Update on techniques, effect on DNA integrity, and implications for ART. Advances in Urology, 2012, 12. doi: 10.1155/2012 /8548 37
  • Dixon-Woods, M., Bonas, S., Booth, A., Jones, D. R., Miller, T., Sutton, A. J., Shaw, R. L., Smith, J. A., & Young, B. (2006). How can systematic reviews incorporate qualitative research? A critical perspective. Qualitative research6(1), 27-44. doi: 10.1177/1468794106058867
  • Dolmans, M. M., Luyckx, V., Donnez, J., Andersen, C. Y., & Greve, T. (2013). Risk of transferring malignant cells with transplanted frozen-thawed ovarian tissue. Fertility and Sterility, 99, 1514–1522. doi: 10.1016/j.fertnstert.2013.03.027
  • Domingo, J., Guillén, V., Ayllón, Y., Martínez, M., Muñoz, E., Pellicer, A., & Garcia-Velasco, J. A. (2012). Ovarian response to controlled ovarian hyperstimulation in cancer patients is diminished even before oncological treatment. Fertility and Sterility, 97, 930–934. doi: 10.1016/j.fertnstert.2012.01.093
  • Donnez, J., Dolmans, M. M., Pellicer, A., Diaz-Garcia, C., Sanchez Serrano, M., Schmidt, K. T., Ernst, E., Luyckx, V., & Andersen, C. Y. (2013).Restoration of ovarian activity and pregnancy after transplantation of cryopreserved ovarian tissue: A review of 60 cases of reimplantation. Fertility             and Sterility, 99, 1503–1513. doi: 10.1016/j.fertnstert.2013.03.030.
  • Donnez, J., & Dolmans, M. M. (2015). Ovarian cortex transplantation: 60 reported live births brings the success and worldwide expansion of the technique           towards routine clinical practice. Journal of Assisted Reproduction and Genetics, 32, 1167–1170. doi: 10.1007/s10815-015-0544-9
  • Dow, K. H., & Kuhn, D. (2004). Fertility options in young breast cancer survivors: a review of the literature. Oncology Nursing Forum, 31, 3, 46-51. doi: 10.1188/0 4.ONF.E46-E53
  • Doyle, J., Richter, K., Stillman, R., Graham, J., & Tucker, M. (2016). Successful elective and medically indicated oocyte vitrification and warming for autologous in vitro fertilization, with predicted birth probabilities for fertility      preservation according to number of cryopreserved oocytes and age at retrieval. Fertility and Sterility, 105, 459–466. doi: 10.1016/j.fertnstert.2015. 10.026
  • Duffy, C., Allen, S. M., Dube, C., & Dickersin, K. (2012). Oncologists’ confidence in knowledge of fertility issues for young women with cancer. Journal of Cancer Education27(2), 369-376. doi: 10.1007/s13187-011-0304-1
  • Ehrbar, V., Urech, C., Rochlitz, C., Dällenbach, R. Z., Moffat, R., Stiller, R., Fäh, M., von Wolff, M., Nawroth, F., Dangel, A., Germeyer, A., Findeklee & Tschudin,          S. (2018). Fertility preservation in young female cancer patients: development and pilot testing of an online decision aid. Journal of Adolescent and Young Adult Oncology7(1), 30-36. doi: 10.1089/jayao.2017.0047
  • Elwyn, G., O'Connor, A., Stacey, D., Volk, R., Edwards, A., Coulter, A., Thomson, R., Barratt, A., Barry, M., Bernstein, S., Butow, P., Clarke, A., Entwistle, V., Feldman-Steward, D., Holmes-Rovner, M., Llewellyn-Thomas, H., Moumjid,     N., Mulley, A., Ruland, C., Sepucha, K., Sykes, A., Whelan, T. (2006). Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. Bmj333(7565), 417. doi: 10.1136/bmj.38926.629329.AE 
  • Elwyn, G., Stiel, M., Durand, M. A., & Boivin, J. (2011). The design of patient decision support interventions: addressing the theory–practice gap. Journal of Evaluation in Clinical Practice17(4), 565-574. doi: 10.1111/j.1365-2753.2010 .01517.x
  • Elwyn, G., Frosch, D., Thomson, R., Joseph-Williams, N., Lloyd, A., Kinnersley, P., Cording, E., Tomson, D., Dodd, C., Rollnick, S., Edwards, A., & Barry, M.             (2012). Shared decision making: a model for clinical practice. Journal of General Internal Medicine27(10), 1361-1367. doi: 10.1007/s11606-012-2077-6
  • Ethics Committee of the American Society for Reproductive Medicine. (2005). Fertility preservation and reproduction in cancer patients. Fertility and Sterility83(6), 1622-1628. doi: 10.1016/j.fertnstert.2005.03.013
  • Ethics Committee of the American Society for Reproductive Medicine. (2015). Disparities in access to effective treatment for infertility in the United States: an Ethics Committee opinion. Fertility and Sterility104(5), 1104-1110. doi: 10.1016/j.fertnstert.2015.07.1139
  •  
  • European Society of Human Reproduction and Embryology. (2015). Guideline on the management of premature ovarian insufficiency. Retrieved from https://www.eshre.eu/Guidelines-and-Legal/Guidelines/Management-of-premature-ovarian-insufficiency.aspx
  • Fagerlin, A., Pignone, M., Abhyankar, P., Col, N., Feldman-Stewart, D., Gavaruzzi, T., Kryworuchko, J., Levin, C. A., Pieterse, A. H., Reyna, V., Stiggelbout, A., Scherer, L. D., Wills, C., & Witteman, H. O. (2013). Clarifying values: an updated review. BMC Medical Informatics and Decision Making13(2), S8. doi: 10.1186/1472-6947-13-S2-S8
  • Fain-Kahn, V., Poirot, C., Uzan, C., Prades, M., Gouy, S., Genestie, C., Duvillard, P., & Morice, P. (2009). Feasibility of ovarian cryopreservation in borderline ovarian tumours. Human Reproduction, 24, 850–855. doi: 10.1093/humrep/den459
  • Falcone, T., Attaran, M., Bedaiwy, M. A., & Goldberg, J. M. (2014). Ovarian function preservation in the cancer patient. Fertility and Sterility, 81, 243–257. doi: 10.1016/j.fertnstert.2003.06.031
  • Fawcett, S. L., Gomez, A. C., Barter, S. J., Ditchfield, M., & Set, P. (2012). More harm than good? The anatomy of misguided shielding of the ovaries. The British Journal of Radiology, 85, 442–447. doi: 10.1259/bjr/25742247
  • Feldman-Stewart, D., O’Brien, M. A., Clayman, M. L., Davison, B. J., Jimbo, M., Labrecque, M., Martin, R. W., & Shepherd, H. (2013). Providing information about options in patient decision aids. BMC Medical Informatics and Decision Making13(2), S4. doi: 10.1186/1472-6947-13-S2-S4
  • Follows, G., Ardeshna, K. M., Barrington, S. F., Culligan, D. J., Hoskin, P. J., Linch, D., Sadullah, S., Williams, M. V., & Wimperis, J. Z. (2014). Guidelines for the first line management of classical Hodgkin lymphoma. British Journal of Haematology, 166, 34–49. doi: 10.1111/bjh.12878
  • Friedler, S., Kok, O., Gidoni, Y., Raziel, A., & Ron-El, R. (2012). Ovarian response to stimulation for fertility preservation in women with malignant disease: A systematic review and meta-analysis. Fertility and Sterility, 97, 125–133. doi: 10.1016/j.fertnstert.2011.10.014
  • Fukushima, H., Fukushima, T., Sakai, A., Suzuki, R., Kobayashi, C., Oshiro, Y., Mizumoto, M., Hoshino, N., Gotoh, C., Urita, Y., Komuro, H., Kaneko, M.,     Sekido, N., Masumoto, K., Sakurai, H., & Sumazaki, R. (2015). Tailor-made treatment combined with proton beam therapy for children with genitourinary/pelvic rhabdomyosarcoma. Reports of Practical Oncology and Radiotherapy, 20, 217–222. doi: 10.1016/j.rpor.2014.12.003
  • Future Fertility. Oncofertility competecy framework. (2018) Available at: http://www.futurefertility.com.au/research‐tab/oncofertility‐competency‐framework/ [Accessed February 22, 2018].
  • Flink, D. M., Sheeder, J., & Kondapalli, L. A. (2017). Do Patient Characteristics Decide if Young Adult Cancer Patients Undergo Fertility Preservation?Journal of adolescent and young adult oncology6(2), 223-228. doi: 10.1089 /jayao.2016.0071
  • Forman, E. J., Anders, C. K., & Behera, M. A. (2010). A nationwide survey of oncologists regarding treatment-related infertility and fertility preservation in female cancer patients. Fertility and Sterility94(5), 1652-1656. doi: 10.1016/j .fertnstert.2009.10.008
  • Garvelink, M. M., Ter Kuile, M. M., Fischer, M. J., Louwé, L. A., Hilders, C. G., Kroep, J. R., & Stiggelbout, A. M. (2013). Development of a decision aid about fertility preservation for women with breast cancer in The Netherlands. Journal of Psychosomatic Obstetrics & Gynecology34(4), 170-178. doi: 10.3109/016 7482X.2013.851663
  • Garvelink, M. M., ter Kuile, M. M., Stiggelbout, A. M., & de Vries, M. (2014). Values clarification in a decision aid about fertility preservation: does it add to information provision?. BMC Medical Informatics and Decision Making14(1),68. doi: 10.1186/1472-6947-14-68
  • Garvelink, M. M., ter Kuile, M. M., Bakker, R. M., Geense, W. J., Jenninga, E., Louwé, L. A., Hilders, C. G. J. M., & Stiggelbout, A. M. (2015). Women's experiences with information provision and deciding about fertility preservation in the Netherlands:‘satisfaction in general, but unmet             needs’. Health Expectations18(5), 956-968. doi: 10.1111/hex.12068
  • Gershenson, D. M. (2005). Fertility-sparing surgery for malignancies in women. Journal of the National Cancer Institute Monographs, 34, 43–47. doi: 10.1093/jncimonographs/lgi011
  • Gidoni, Y., Holzer, H., Tulandi, T., & Tan, S. L. (2008). Fertility preservation in patients with non-oncological conditions. Reproductive Biomedicine Online, 16, 792–800. doi: 10.1016/S1472-6483(10)60144-7
  • Gleeson, H., & Shalat, S. M. (2005). The impact of cancer therapy on the endocrine system in survivors of childhood brain tumours. Endocrinology Related Cancer, 24, 589–602. doi: https://doi.org/10.1677/erc.1.00779
  • Godin, K., Stapleton, J., Kirkpatrick, S. I., Hanning, R. M., & Leatherdale, S. T. (2015). Applying systematic review search methods to the grey literature: a case study examining guidelines for school-based breakfast programs in Canada. Systematic Reviews4(1), 138. doi: 10.1186/s13643-015-0125-0
  • Gonçalves, V., Sehovic, I., & Quinn, G. (2013). Childbearing attitudes and decisions of young breast cancer survivors: a systematic review. Human Reproduction Update20(2), 279-292. doi: 10.1093/humupd/dmt039
  • Goossens, J., Delbaere, I., Van Lancker, A., Beeckman, D., Verhaeghe, S., & Van Hecke, A. (2014). Cancer patients’ and professional caregivers’ needs, preferences and factors associated with receiving and providing fertility-        related information: a mixed-methods systematic review. International Journal of Nursing Studies51(2), 300-319. doi: 10.1016/j.ijnurstu.2013.06.015
  • Gorman, J. R., Bailey, S., Pierce, J. P., & Su, H. I. (2012). How do you feel about fertility and parenthood? The voices of young female cancer survivors. Journal of Cancer Survivorship6(2), 200-209. doi: 10.1007/s11764-011-0211-9
  • Gorman, J. R., Su, H. I., Pierce, J. P., Roberts, S. C., Dominick, S. A., & Malcarne, V. L. (2014). A multidimensional scale to measure the reproductive concerns of young adult female cancer survivors. Journal of Cancer Survivorship8(2), 218-228. doi: 10.1007/s11764-013-0333-3
  • Graham, P., Evitts, T., & Thomas-MacLean, R. (2008). Environmental scans: How useful are they for primary care research?. Canadian Family Physician54(7), 1022-1023.
  • Griesshammer, M., Bergmann, L., & Pearson, T. (1998). Fertility, pregnancy and the management of myeloproliferative disorders. Baillieres Clinical Haematology, 11, 859–874. doi: 10.1016/S0140-6736(97)08247-0
  • Gubbala, K., Laios, A., Gallos, I., Pathiraja, P., Haldar, K., & Ind, T. (2014). Outcomes of ovarian transposition in gynaecological cancers; a systematic review and meta-analysis. Journal of Ovarian Research, 7, 69. doi:           10.1186/1757-2215-7-6
  • Gubbels, C. S., Kuppens, S. M., Bakker, J. A., Konings, C. J., Wodzig, K. W., Der Velden, M. G., Menheere, P. P., Rubio-Gozalbo, M. E. (2009). Pregnancy in classic galactosemia despite undetectable anti-Mullerian hormone. Fertility    and Sterility, 91, 1213–1296. doi: 10.1016/j.fertnstert.2008.12.031
  • Herrmann, A., Mansfield, E., Hall, A. E., Sanson-Fisher, R., & Zdenkowski, N. (2016). Wilfully out of sight? A literature review on the effectiveness of cancer-related decision aids and implementation strategies. BMC Medical Informatics and Decision Making16(1), 36. doi: 10.1186/s12911-016-0273-8
  • Hershberger, P. E., Finnegan, L., Pierce, P. F., & Scoccia, B. (2013). The decision‐making process of young adult women with cancer who considered fertility cryopreservation. Journal of Obstetric, Gynecologic & Neonatal Nursing42(1), 59-69. doi: 10.1111/j.1552-6909.2012.01426.x
  • Hershberger, P. E., Sipsma, H., Finnegan, L., & Hirshfeld-Cytron, J. (2016). Reasons why young women accept or decline fertility preservation after cancer diagnosis. Journal of Obstetric, Gynecologic & Neonatal Nursing45(1), 123-134. doi: 10.1016/j.jogn.2015.10.003
  • Hill, K. A., Nadler, T., Mandel, R., Burlein-Hall, S., Librach, C., Glass, K., & Warner, E. (2012). Experience of young women diagnosed with breast cancer who        undergo fertility preservation consultation. Clinical Breast Cancer12(2), 127-132. doi: 10.1016/j.clbc.2012.01.002
  • Hoffman, A. S., Volk, R. J., Saarimaki, A., Stirling, C., Li, L. C., Härter, M., ... & Llewellyn-Thomas, H. (2013). Delivering patient decision aids on the Internet: definitions, theories, current evidence, and emerging research areas. BMC Medical Informatics and Decision Making13(2), S13. doi: 10.1186/1472-6947-13-S2-S13
  • Hoffman, A. S., Sepucha, K. R., Abhyankar, P., Sheridan, S., Bekker, H., LeBlanc, A., Levin, C., Ropka, M., Shaffer, V., Stacey, D., Stalmeier, P., Vo, H., Wills, C., & Thomson, R. (2018). Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: examples of reporting SUNDAE items from patient decision aid evaluation literature. BMJ Quality & Safety27(5), 389-412. doi: 10.1136/bmjqs -2017-006985
  • Holton, S., Kirkman, M., Rowe, H., & Fisher, J. (2012). The childbearing concerns and related information needs and preferences of women of reproductive age with a chronic, noncommunicable health condition: a systematic review. Women's Health Issues22(6), e541-e552. doi: 10.1016/j.whi.2012.08         .001
  • Horne, R., & Weinman, J. (1999). Patients' beliefs about prescribed medicines and their role in adherence to treatment in chronic physical illness. Journal of Psychosomatic Research47(6), 555-567. doi: 10.1016/S0022-3999(99)00057-4
  • Hourvitz, A., Yerushalmi, G. M., Maman, E., Raanani, H., Elizur, S., Brengauz, M., Orvieto, R., Dor, J., & Meirow, D. (2015). Combination of ovarian tissue harvesting and immature oocyte collection for fertility preservation increases preservation yield. Reproductive Biomedicine Online, 31, 497–505. doi: 10.1016/j.rbmo.2015.06.025
  • Howard-Anderson, J., Ganz, P. A., Bower, J. E., & Stanton, A. L. (2012). Quality of life, fertility concerns, and behavioral health outcomes in younger breast             cancer survivors: a systematic review. Journal of the National Cancer Institute104(5), 386-405. doi: 10.1093/jnci/djr541
  • Huang, S. M., Hsieh, P. L., Hsiung, Y., Tseng, L. M., Chen, P. H., & Hung, C. T. (2017). Decision-making process regarding fertility among reproductive-age women with cancer in Taiwan. Cancer Nursing40(5), 394-402. doi: 10.1097/NCC.0000000000000439
  • Hudson, M. M. (2010). Reproductive outcomes for survivors of childhood cancer. Obstetrics and Gynecology, 116,1171–1183. doi: 10.1097/AOG.0b013e3181 f87c4b
  • Human Fertility and Embryology Authority. (2016). Fertility treatment 2014, trends and figures. Retrieved from http://www.hfea.gov.uk/docs/HFEA_Fertility_treatment_Trends_and_figures_2014.pdf
  • Ives, A., Saunders, C., Bulsara, M., & Semmens, J. (2007). Pregnancy after breast cancer: population based study. BMJ334(7586), 194. doi: 10.1136/bmj.3903 5.667176.55
  • Jacobson, M. H., Mertens, A. C., Spencer, J. B., Manatunga, A. K., & Howards, P. P. (2015). Menses resumption after cancer treatment-induced amenorrhea occurs early or not at all. Fertility and Sterility, 105, 765–772. doi: 10.1016/j.fertnstert.2015.11.020
  • Jadoul, P., & Kim, S. S. (2012). Fertility considerations in young women with hematological malignancies. Journal of Assisted Reproduction and Genetics, 29, 470–487. doi: 10.1007/s10815-012-9792-0
  • Jayaprakasan, K., Chan, Y., Islam, R., Haoula, Z., Hopkisson, J., Coomarasamy, A., & Fenning, R. (2012). Prediction of in vitro fertilization outcome at different antral follicle count thresholds in a prospective cohort of 1,012 women. Fertility and Sterility, 98, 657–663. doi: 10.1016/j.fertnstert.2012.05.042
  • Jensen, J. R., Morbeck, D. E., & Coddington III, C. C. (2011). Fertility preservation. Mayo Clinic Proceedings, 86, 1, 45-49. doi: 10.4065/mcp.2010.0564
  • Jensen, A. K., Kristensen, S. G., Macklon, K. T., Jeppesen, J. V., Fedder, J., Ernst, E., & Anderson, C. Y. (2015). Outcomes of transplantations of cryopreserved ovarian tissue to 41 women in Denmark. Human Reproduction, 30, 2838–2845. doi: 10.1093/humrep/dev230
  • Jeruss, J. S., & Woodruff, T. K. (2009). Preservation of fertility in patients with cancer. New England Journal of Medicine360(9), 902-911. doi: 10.1056/NEJ Mra0801454
  • Johnson, L. N., & Gracia, C. R. (2014). Educating providers on evidence-based medical guidelines. Oncofertility Communication (pp. 155-166). Springer, New York, NY.
  • Jones, G, L., Bekker, H., Velikova, G., Collins, K., Skull, J., et al. Cancer, Fertility and Me: The development and evaluation of a fertility preservation decision support intervention to support women with cancer in Yorkshire: Yorkshire Cancer Research (S391), 1st July 2015; 2015.
  • Jones, G. L., Hughes, J., Greenfield, D., Lacey, A., Slade, P., Skull, J., & Ledger, W. (2016). What factors influence the fertility preservation treatment decision-making process in women with cancer? The qualitative findings of the PREFER study. European shared medical decision making conferences. (Abstract). Retrieved from https://smdm.confex.com/smdm/16BEC/webprogram/Paper9835.html
  • Jones, G. L., Hughes, J., Mahmoodi, N., Greenfield, D., Brauten-Smith, G., Skull, J., Gath, J., Yeomanson, D., Baskind, E., Snowden, J. A., Jacques, R. M.,           Velikova, G., Collins, K., Stark, D., Phillips, R., Lane, S., & Bekker, H. L. (2017). Observational study of the development and evaluation of a fertility         preservation patient decision aid for teenage and adult women diagnosed with cancer: the Cancer, Fertility and Me research protocol. BMJ open7(3), e013219. doi: 10.1136/bmjopen-2016-013219        
  • Jones, G., Hughes, J., Mahmoodi, N., Smith, E., Skull, J., & Ledger, W. (2017). What factors hinder the decision-making process for women with cancer and contemplating fertility preservation treatment? Human Reproduction Update23(4), 433-457. doi: 10.1093/humupd/dmx009
  • Joseph-Williams, N., Newcombe, R., Politi, M., Durand, M. A., Sivell, S., Stacey, D., O’Connor, A., Volk, R. J., Edwards, A., Bennett, C., Pignone, M., Thomson,            R., & Elwyn, G. (2014). Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making34(6), 699-710. doi: 10.1177/0272989X13501721
  • Joshi, S., Savani, B., Chow, E., Gilleece, M., Halter, J., Jacobsohn, D., Pidala, J., Quinn, G. P., Cahn, J-Y., Jakubowski, A. A., Kamani, N. R., Lazarus, H. M.,Rizzo, J. D., Schouten, H. C., Socie, G., Stratton, P., Sorror, M. L., Warwick, A. B., Wingard, J. R., Loren, A. W., & Majhail, N. S. (2014). Clinical guide to             fertility preservation in hematopoietic cell transplant recipients. Bone Marrow Transplantation, 49, 477–484. doi: 10.1038/bmt.2013.211
  • Jukkala, A. M., Azuero, A., McNees, P., Bates, G. W., & Meneses, K. (2010). Self-assessed knowledge of treatment and fertility preservation in young women with breast cancer. Fertility and Sterility94(6), 2396-2398. doi: 10.1016/j.fertnstert.2010.03.043
  • Karaöz, B., Aksu, H., & Küçük, M. (2010). A qualitative study of the information needs of premenopausal women with breast cancer in terms of contraception, sexuality, early menopause, and fertility. International Journal of Gynecology & Obstetrics109(2), 118-120. doi: 10.1016/j.ijgo.2009.11.027
  • Katsifis, G.E., & Tzioufas, A.G. (2004). Ovarian failure in systemic lupus erythematosus patients treated with pulsed intravenous cyclophosphamide. Lupus, 13, 673–678. doi: 10.1191/0961203304lu2012oa
  • Kim, S.S., Donnez, J., Barri, P., Pellicer, A., Patrizio, P., Rosenwaks, Z., Nagy, P., Falcone, T., Andersen, C., Hovatta, O., Wallace, H., Meirow, D., Gook, D., Kim, S. H., Tzeng, C-R., Suzuki, S., Ishizuka, B., & Dolmans, M. M. (2012). Recommendations for fertility preservation in patients with lymphoma, leukemia, and breast cancer. Journal of Assisted Reproduction and Genetics, 29, 465–468. doi: 10.1007/s10815-012-9786-y
  • Kim, J., Deal, A. M., Balthazar, U., Kondapalli, L. A., Gracia, C., & Mersereau, J. E. (2013). Fertility preservation consultation for women with cancer: are we        helping patients make high-quality decisions?. Reproductive Biomedicine    Online27(1), 96-103. doi: 10.1016/j.rbmo.2013.03.004
  • Kim, J., & Mersereau, J. E. (2015). A pilot study about female adolescent/young childhood cancer survivors' knowledge about reproductive health and their views about consultation with a fertility specialist. Palliative & Supportive Care13(5), 1251-1260. doi: 10.1017/S147895151400114X
  • Kim, J., Turan, V., & Oktay, K. (2016). Long-term safety of letrozole and gonadotropin stimulation for fertility preservation in women with breast cancer. The Journal of Clinical Endocrinology and Metabolism, 101, 1364–1371. doi: 10.1210/jc.2015-3878
  • Kirkman, M., Winship, I., Stern, C., Neil, S., Mann, G. B., & Fisher, J. R. W. (2014). Women's reflections on fertility and motherhood after breast cancer and its treatment. European Journal of Cancer Care23(4), 502-513. doi: 10.1111/ec c.12163
  • Kissil, K., & Davey, M. (2012). Health disparities in procreation: unequal access to assisted reproductive technologies. Journal of Feminist Family Therapy24(3), 197-212. doi: 10.1080/08952833.2012.648139
  • Klemp, J. R., & Kim, S. S. (2012). Fertility preservation in young women with breast cancer. Journal of Assisted Reproduction and Genetics, 29, 469–472. doi: 10. 1007/s10815-012-9791-1
  • Klock, S. C., Zhang, J. X., & Kazer, R. R. (2010). Fertility preservation for female cancer patients: early clinical experience. Fertility and Sterility94(1), 149-       155. doi: 10.1016/j.fertnstert.2009.03.028
  • Kuang, Y., Chen, Q., Hong, Q., Lyu, Q., Ai, A., Fu, Y., & Shoham, Z. (2014). Double stimulations during the follicular and luteal phases of poor responders in IVF/ICSI programmes (Shanghai protocol). Reproductive Biomedicine Online, 29, 684–691. doi: 10.1016/j.rbmo.2014.08.009
  • LaBrecque, S. F., Wallach, H., & Waimey, K. E. (2014). Oncofertility communication tools for professionals and the public. In Oncofertility Communication (pp. 141-153). Springer, New York, NY.
  • Lambertini, M., Ceppi, M., Poggio, F., Peccatori, F. A., Jr. Azim, H. A., Ugolini, D., Pronzato, P., Loibl, S., Moore, H. C. F., Partridge, A. H., Bruzzi, P., & Del Mastro, L. (2015). Ovarian suppression using luteinizing hormone-releasing hormone agonists during chemotherapy to preserve ovarian function and fertility of breast cancer patients: A meta-analysis of randomized studies. Annals of Oncology, 26, 2408–2419. doi: 10.1093/annonc/mdv374
  • Larsen, E.C., Schmiegelow, K., Rechnitzer, C., Loft, A., Muller, J., & Andersen, A. N. (2004). Radiotherapy at a young age reduces uterine volume of childhood cancer survivors. Acta Obstetricia Et Gynecologica Scandinavica, 83, 96–102. doi: 10.1111/j.1600-0412.2004.00332.x
  • Lavery, S. A., Islam, R., Hunt, J., Carby, A., & Anderson, R. A. (2016). The medical and ethical challenges of fertility preservation in teenage girls: A case series of sickle cell anaemia patients prior to bone marrow transplant. Human Reproduction, 31, 1501–1507. doi: 10.1093/humrep/dew084
  • Lawson, A. K., Klock, S. C., Pavone, M. E., Hirshfeld-Cytron, J., Smith, K. N., & Kazer, R. R. (2015). Psychological counselling of female fertility preservation patients. Journal of Psychosocial Oncology33(4), 333-353. doi: 10.1080/07347332.2015.1045677
  • Loblaw, D. A., Bezjak, A., & Bunston, T. (1999). Development and testing of a visit-specific patient satisfaction questionnaire: the Princess Margaret Hospital Satisfaction With Doctor Questionnaire. Journal of Clinical Oncology17(6), 1931-1931. doi: 10.1200/JCO.1999.17.6.1931 
  • Loren, A. W., Mangu, P. B., Beck, L. N., Brennan, L., Magdalinski, A. J., Partridge, A. H., Quinn, G., Wallace, W. H., & Oktay, K. (2013). Fertility preservation for patients with cancer: American Society of Clinical Oncology clinical practice        guideline update. Journal of Clinical Oncology31(19), 2500. doi: 10.1200/JC         O.2013.49.2678
  • Lee, S. J., Schover, L. R., Partridge, A. H., Patrizio, P., Wallace, W. H., Hagerty, K., Beck, L. N., Brennan, L. V., & Oktay, K. (2006). American Society of Clinical Oncology recommendations on fertility preservation in cancer patients. Journal of Clinical Oncology24(18), 2917-2931. doi: 10.1200/JCO. 2006.06.5888
  • Lee, M. C., Gray, J., Han, H. S., & Plosker, S. (2010). Fertility and reproductive considerations in premenopausal patients with breast cancer. Cancer Control17(3), 162-172. doi: 10.1177/107327481001700304
  • Lee, R. J., Wakefield, A., Foy, S., Howell, S. J., Wardley, A. M., & Armstrong, A. C. (2011). Facilitating reproductive choices: the impact of health services on the experiences of young women with breast cancer. PsychoOncology20(10), 1044-1052. doi: 10.1002/pon.1826
  • Lee, R., Armstrong, A. Chapter 17: Fertility issues in cancer treatment. In: Velikova A, Followfield L, Younger J, Board RE, Selby P, editors. Problem solving in patient-centred and integrated cancer care. Oxfordshire: EBN Health; 2018. p.87–91.
  • Légaré, F., Stacey, D., Gagnon, S., Dunn, S., Pluye, P., Frosch, D., Kryworuchko, J., Elwyn, G., Gagnon, M-P., & Graham, I. D. (2011). Validating a conceptual        model for an inter‐professional approach to shared decision making: a   mixed methods study. Journal of Evaluation in Clinical Practice17(4), 554-564. doi: 10.1111/j.1365-2753.2010.01515.x
  • Légaré, F., Stacey. D. Chapter 11: an interprofessional approach to shared decision making: what it means and where next. In: Woodruff TK, Clayman M, L., Waimey, K. E editors. Oncofertility communication–sharing information and building relationships across disciplines. New York: Springer; 2014. p. 131–9.
  • Légaré, F., & Thompson-Leduc, P. (2014). Twelve myths about shared decision making. Patient education and counselling96(3), 281-286. doi: 10.1016/j.pec.2014.06.014
  • Letourneau, J. M., Melisko, M. E., Cedars, M. I., & Rosen, M. P. (2011). A changing perspective: Improving access to fertility preservation. Nature Reviews Clinical Oncology, 8, 56–60. doi: 10.1038/nrclinonc.2010.133
  • Letourneau, J. M., Ebbel, E. E., Katz, P. P., Katz, A., Ai, W. Z., Chien, A. J., Melisko, M. E., Cedars, M. I., & Rosen, M. P. (2012). Pre-treatment fertility counselling and fertility preservation improve quality of life in reproductive age women with cancer. Cancer118(6), 1710-1717. doi: 10.1002/cncr.26459
  • Leventhal, H., Brissette, I., Leventhal, E. A. editors. Chapter 3: the common-sense model of self-regulation of health and illness. New York: Routledge, Taylor & Francis Group; 2003.
  • Lewis, P. E., Sheng, M., Rhodes, M. M., Jackson, K. E., & Schover, L. R. (2012). Psychosocial concerns of young African American breast cancer survivors. Journal of Psychosocial Oncology30(2), 168-184. doi: 10.1080/07347332.2011.651259
  • Ley, P. (1988). Communicating with patients: Improving communication, satisfaction and compliance. Croom Helm.
  • Loren, A. W., Mangu, P. B., Beck, L. N., Brennan, L., Magdalinski, A. J., Partridge, A. H., Quinn, G., Wallace, W. H., & Oktay, K. (2013). Fertility preservation for patients with cancer: American Society of Clinical Oncology clinical practice        guideline update. Journal of Clinical Oncology31(19), 2500. doi: 10.1200/JC O.2013.49.2678
  • Maheshwari, A., Raja, E. A., & Bhattacharya, S. (2016). Obstetric and perinatal outcomes after either fresh or thawed frozen embryo transfer: An analysis of 112,432 singleton pregnancies recorded in the human fertilisation and embryology authority anonymized dataset. Fertility and Sterility, 106, 1703– 1708. doi: 10.1016/j.fertnstert.2016.08.047
  • Mahood, Q., Van Eerd, D., & Irvin, E. (2014). Searching for grey literature for systematic reviews: challenges and benefits. Research Synthesis    Methods5(3), 221-234. doi: 10.1002/jrsm.1106
  • Mahmoodi, N., Bekker, H, L., King, N., & Al, E. Decision AIDS' efficacy to support women's fertility preservation choices before cancer treatment: an environmental scan. In European Society of Med Decis Making Society Bi‐    Annual Conference (London, England).
  • Mahmoodi, N., Bekker, H. L., King, N., Hughes, J., & Jones, G. (2016). Decision aids’ efficacy to support women’s fertility preservation choices before cancer treatment: an environmental scan. In: Teenage and Young Adults with Cancer :The essentials of fertility in young people with cancer, 8th July 2016, Leicester, UK. (Unpublished)
  • Mahmoodi, N., Bekker, H. L., King, N. V., Hughes, J., & Jones, G. L. (2018). Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan?. BMC Medical Informatics and Decision Making18(1), 104. doi: 10.118 6/s12911-018-0698-3
  • Mancini, J., Rey, D., Préau, M., Malavolti, L., & Moatti, J. P. (2008). Infertility induced by cancer treatment: inappropriate or no information provided to majority of French survivors of cancer. Fertility and Sterility90(5), 1616-1625. doi: 10.1016/j.fertnstert.2007.08.064
  • Mangili, G., Somigliana, E., Giorgione, V., Martinelli, F., Filippi, F., Petrella, M. C., Candiani, M., & Peccatori, F. (2016). Fertility preservation in women with borderline ovarian tumours. Cancer Treatment Reviews, 49, 13–24. doi: 10.1016/j.ctrv.2016.06.010
  • Martinez, F., Devesa, M., Coroleu, B., Tur, R., González, R., Boada, M., Solé, M., Veiga, A., & Barri, P. N. (2013). Cancer and fertility preservation: Barcelona consensus meeting. Gynecological Endocrinology, 29, 285–291. doi: 10.3109/09513590.2012.743019
  • Mathur, A., Orellana, E. R., Frohnmayer, A., Jivanjee, P., Nail, L., Hayes-Lattin, B., & Block, R. G. (2013). Patients’ Perception of Patient–Provider Communication in Fertility Preservation Decision Making Among Young Women With Cancer: A Qualitative Study. Sage Open3(3), 2158244013505293. doi: 10.1177/2158244013505293
  • Mauz-Körholz, C., Hasenclever, D., Holzendorf, V., Bernstädt, M., Jürgens, H., Burdach, S., Eggert, A., Berthold, F., Müller, H. L., Frühwald, M. C., Klingebiel, T., Metzler, M., & Körholz, D. (2015). Feasibility of VECOPA, a   dose-  intensive chemotherapy regimen for children and adolescents with intermediate and advanced stage Hodgkin lymphoma: results of the GPOH-HD-2002/VECOPA pilot trial. Leukemia & Lymphoma56(5), 1308-1314. doi: 10.3109/10428194.2014.961011
  • McCaffery, K. J., Holmes-Rovner, M., Smith, S. K., Rovner, D., Nutbeam, D., Clayman, M. L., Kelly-Blake, K., Wolf, M. S., & Sheridan, S. L. (2013). Addressing health literacy in patient decision aids. BMC Medical Informatics and Decision Making13(2), S10.      doi: 10.1186/1472-6947-13-S2-S10
  • McCall, M. L., Keaty, E. C., & Thompson, J. D. (1958). Conservation of ovarian tissue     in the treatment of carcinoma of the cervix with radical surgery. American Journal of Obstetrics and Gynecology, 75, 590–600. doi: 10.1016/0002-9378(58)90614-8
  • McDowell, S., & Murray, A. (2011). Barriers to continuing in vitro fertilisation–Why do patients exit fertility treatment? Australian and New Zealand Journal of Obstetrics and Gynaecology51(1), 84-90. doi: 10.1111/j.1479-828X.2010.01     236.x
  • Medicines and Healthcare products Regulatory Agency. Best Practice Guidance on Patient Information Leaflets 2014. Available from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/328405/Best_practice_guidance_on_patient_information_leaflets.pdf. Accessed 17 May 2018.
  • Medlock, S., Eslami, S., Askari, M., Arts, D. L., Sent, D., de Rooij, S. E., & Abu-Hanna, A. (2015). Health information–seeking behavior of seniors who use the internet: a survey. Journal of Medical Internet Research17(1), e10. doi: 10.2196/jmir.3749
  • Meirow, D., & Nugent, D. (2001). The effects of radiotherapy and chemotherapy on female reproduction. Human Reproduction Update7(6), 535-543. doi: 10.1093/humupd/7.6.535
  • Meirow, D., Biederman, H., Anderson, R. A., & Wallace, W. H. B. (2010). Toxicity of chemotherapy and radiation on female reproduction. Clinical Obstetrics and Gynecology53(4), 727-739. doi: 10.1097/GRF.0b013e3181f96b54
  • Meirow, D., Raanani, H., Maman, E., Paluch-Shimon, S., Shapira, M., Cohen, Y., Kuchuk, I., Hourvitz, A., Levron, J., Mozer-Mendel, M., Brengauz, M., Biderman, H., Manela, D., Catane, R., Dor, J., Orvieto, R., & Kaufman, B. (2014). Tamoxifen co-administration during controlled ovarian hyperstimulation for in vitro fertilization in breast cancer patients increases the safety of fertility-preservation treatment strategies. Fertility and Sterility, 102, 488–495. doi: 10.1016/j.fertnstert.2014.05.017
  • Meirow, D., Roness, H., Kristensen, S. G., & Andersen, C. Y. (2015). Optimizing outcomes from ovarian tissue cryopreservation and transplantation; activation versus preservation. Human Reproduction, 30, 2453–2456. doi: 10.1093/hum rep/dev210
  • Meirow, D., Ra'anani, H., Shapira, M., Brenghausen, M., Derech Chaim, S., Aviel-Ronen, S., Amariglio, N., Schiff, E., Orvieto, R., & Dor, J. (2016). Transplantations of frozen-thawed ovarian tissue demonstrate high reproductive performance and the need to revise restrictive criteria. Fertility and Sterility, 106, 467–474. doi: 10.1016/j.fertnstert.2016.04.031
  • Mersereau, J. E., Goodman, L. R., Deal, A. M., Gorman, J. R., Whitcomb, B. W., & Su, H. I. (2013). To preserve or not to preserve: how difficult is the decision about fertility preservation? Cancer119(22), 4044-4050. doi: 10.1002/cncr.28317          
  • Miller, K. D., Siegel, R. L., Lin, C. C., Mariotto, A. B., Kramer, J. L., Rowland, J. H., Stein,           K. D.,       Alteri, R., & Jemal, A. (2016). Cancer treatment and survivorship statistics, 2016. Cancer Journal for Clinicians, 66, 271–289. doi: 10.3322/caac.21349
  • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Annals of Internal Medicine151(4), 264-269. doi: 10.7326/0003-4819-151-4-200908180-00135
  • Morris, D., Drake, E., Saarimaki, A., Bennett, C., & O’Connor, A. (2008). Can people find patient decision aids on the Internet?. Patient Education and Counselling73(3), 557-560. doi: 10.1016/j.pec.2008.07.046
  • Morgan, S., Anderson, R. A., Gourley, C., Wallace, W. H., & Spears, N. (2012). How do chemotherapeutic agents damage the ovary? Human Reproduction Update, 18, 525–535. doi: 10.1093/humupd/dms022
  • Morice, P., Thiam-Ba, R., Castaine, D., Haie-Meder, C., Gerbaulet, A., Pautier, P., Duvillard, P., & Michel, G. (1998). Fertility results after ovarian transposition for pelvic malignancies treated by external irradiation or brachytherapy. Human Reproduction, 13, 660–666. doi: 10.1093/humrep/13.3.660 
  • Michel, G. (1998). Fertility results after ovarian transposition for pelvic malignancies treated by external irradiation or brachytherapy. Human Reproduction, 13, 660–666. doi: 10.1093/humrep/13.3.660
  • Mueller, B. A., Chow, E. J., Kamineni, A., Daling, J. R., Fraser, A., Wiggins, C. L., Mineau, G. P., Hamre, M. R., Severson, R. K., Drews-Botsch, C. (2009). Pregnancy outcomes in female childhood and adolescent cancer survivors: A linked cancer-birth registry analysis. Archives of Pediatric and Adolescent Medicine, 163, 879–886. doi: 10.1001/archpediatrics.2009.112
  • Nachtigall, R. D. (2006). International disparities in access to infertility services. Fertility and Sterility85(4), 871-875. doi: 10.1016/j.fertnstert.2005.08.066
  • Nagels, H. E., Rishworth, J. R., Siristatidis, C. S., & Kroon, B. (2015). Androgens (dehydroepiandrosterone or testosterone) for women undergoing assisted reproduction. Cochrane Database of Systematic Reviews, CD009749. doi: 10.1002/14651858.CD009749.pub2
  • National Child Cancer Network. (2014). Fertility preservation for people with cancer: A New Zealand guideline. Retrieved from https://www.starship.org.nz/media/ 261297/fertility_preservation_for_people_with_cancer__a_new_zealand_guideline_april_2014final.pdf
  • National Institute for Health and Clinical Excellence. “Fertility”, NICE clinical guideline 11. Nice Clin Guidelines (2004).
  • National Institute for Health and Care Excellence. Fertility problems: assessment and treatment: Clinical guideline [CG156]: NICE; 2013. Available from https://www.nice.org.uk/guidance/cg156. Accessed 27 Mar 2018.
  • NICE (2004).  ‘Fertility’, NICE Clinical Guideline 11 (2004) [online]. www.nice.org.uk/guidance/CG11 (11 January 2016, date last accessed).
  •  
  • NICE (2013).  Fertility Problems: Assessment and Treatment Clinical Guideline [CG156] (2013) [online]. https://www.nice.org.uk/guidance/cg156/ifp/chapter/about-this-information (22 January 2016, date last accessed).
  •  
  • NICE (2014). Cryopreservation to Preserve fertility in People Diagnosed with Cancer (2014) [online] http://pathways.nice.org.uk/pathways/fertility#path=vie w%3A/pathways/fertility/cryopreservation-to-preserve-fertility-in-people-diagnosed-with-cancer.xml&content=view-index (26 January 2016, date last accessed).
  • Nelson, S. M., Yates, R. W., Lyall, H., Jamieson, M., Traynor, I., Gaudoin, M., Mitchell, P., Ambrose, P., & Fleming, R. (2009). Anti-Mullerian hormone- based approach to controlled ovarian stimulation for assisted conception. Human Reproduction, 24, 867–875. doi: 10.1093/humrep/den480
  • Niemasik, E. E., Letourneau, J., Dohan, D., Katz, A., Melisko, M., Rugo, H., & Rosen, M. (2012). Patient perceptions of reproductive health counselling at the time of cancer diagnosis: a qualitative study of female California cancer survivors. Journal of Cancer Survivorship6(3), 324-332. doi: 10.1007/s11764-012-0227-9 
  • Nutbeam, D. (2000). Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International15(3), 259-267. doi: 10.10 93/heapro/15.3.259
  • O’Connor, A. M., & Edwards, A. (2009). The role of decision aids in promoting evidence-based patient choice. Shared Decision-Making in Health Care: Achieving Evidence-Based Patient Choice, 191-200.
  • Office of National Statistics. (2016). Births by parents’ characteristics in England and Wales: 2015. Retrieved from https://www.ons.gov.uk/peoplepopulationandcommunity/birthsdeathsandmarriages/livebirths/bulletins/birthsbyparentscharact            eristicsinenglandandwales/2015
  • Oktay, K., Cil, A.P., & Bang, H. (2006). Efficiency of oocyte cryopreservation: A meta-analysis. Fertility and Sterility, 86, 70–80. doi: 10.1016/j.fert nstert.200 6.03.017
  • Oktay, K., & Bedoschi, G. (2014). Oocyte cryopreservation for fertility preservation in postpubertal female children at risk for premature ovarian failure due to accelerated follicle loss in Turner syndrome or cancer treatments. Journal of Pediatric and Adolescent Gynecology, 27, 342–346. doi: 10.1016/j.jpag.2014. 01.003
  • Okugawa, K., Kobayashi, H., Sonoda, K., Kaneki, E., Kawano, Y., Hidaka, N., Egashira, K., Fujita, Y., Yahata, H., & Kato, K. (2016). Oncologic and obstetric outcomes and complications during pregnancy after fertility-sparing abdominal trachelectomy for cervical           cancer: A retrospective review. International Journal of Clinical Oncology, 22, 340–346. doi: 10.1007/s10147-016-1059-9
  • Pacey, A. A., & Eiser, C. (2011). Banking sperm is only the first of many decisions for men: What healthcare professionals and men need to know. Human Fertility (Cambridge), 14, 208–217. doi: 10.3109/14647273.2011.634480
  • Parmegiani, L., Garello, C., Granella, F., Guidetti, D., Bernardi, S., Cognigni, G.E., Revelli, A., & Filicori, M. (2009). Long-term cryostorage does not adversely affect the outcome of oocyte thawing cycles. Reproductive Biomedicine Online, 19, 374–379. doi: 10.1016/S1472-6483(10)60171-X
  • Partridge, A. H., Gelber, S., Peppercorn, J., Sampson, E., Knudsen, K., Laufer, M., Rosenberg, R., Przypyszny, M.,Rein, A., & Winer, E. P. (2004). Web-based survey of fertility issues in young women with breast cancer. Journal of Clinical Oncology22(20), 4174-4183. doi: 10.1200/JCO.2004.01.159
  • Partridge, A. H. (2008). Fertility preservation: a vital survivorship issue for young women with breast cancer. Journal of Clinical Oncology, 26(16), pp. 2612–2613. doi: 10.1200/JCO.2008.16.1976
  • Peate, M., Meiser, B., Hickey, M., & Friedlander, M. (2009). The fertility-related concerns, needs and preferences of younger women with breast cancer: a systematic review. Breast Cancer Research and Treatment116(2), 215. doi: 10.1007/s10549-009-0401-6
  • Peate, M., Meiser, B., Friedlander, M., Saunders, C., Martinello, R., Wakefield, C.            E., & Hickey, M. (2011). Development and pilot testing of a fertility decision         aid for young women diagnosed with early breast cancer. The Breast Journal17(1), 112-114. doi: 10.1111/j.1524-4741.2010.01033.x 
  • Peate, M., Meiser, B., Friedlander, M., Zorbas, H., Rovelli, S., Sansom-Daly, U., Sangster, J., Hadzi-Pavlovic, D., & Hickey, M. (2011). It's now or never: fertility-related knowledge,     decision-making preferences, and treatment intentions in young women with breast cancer—an Australian fertility decision aid collaborative group study. Journal of Clinical Oncology29(13), 1670-1677. doi: 10.1200/JCO.2010.31.2462
  • Peate, M., Meiser, B., Cheah, B. C., Saunders, C., Butow, P., Thewes, B.,             Hart, R., Phillips, K-A, Hickey, M., & Friedlander, M. (2012). Making hard choices easier: a prospective, multicentre study to assess the efficacy of a fertility-related decision aid in young women with early-stage breast cancer. British Journal of Cancer106(6), 1053. doi: 10.1038/bjc.2012.61
  • Peate, M., Smith, S. K., Pye, V., Hucker, A., Stern, C., Stafford, L., Oakman, C., Chin-Lenn, L., Shanahan, K., Ratnayake Gamage, N., & Hickey, M. (2017). Assessing the usefulness and acceptability of a low health literacy online decision aid about reproductive choices for younger women with breast cancer: the aLLIAnCE pilot study protocol. Pilot and Feasibility Studies3(1), 31. doi: 10.1186/s40814-017-0144-9
  • Peccatori, F. A., Azim Jr, H. A., Orecchia, R., Hoekstra, H. J., Pavlidis, N., Kesic, V., & ESMO Guidelines Working Group. (2013). Cancer, pregnancy and fertility: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of Oncology24(suppl_6), vi160-vi170. doi: 10.1093/annonc/mdt199
  • Peddie, V. L., Porter, M. A., Barbour, R., Culligan, D., MacDonald, G., King, D., Horn, J., & Bhattacharya, S. (2012). Factors affecting decision making about fertility preservation after cancer diagnosis: a qualitative study. BJOG: An International Journal of Obstetrics & Gynaecology119(9), 1049-1057. doi: 10.1111/j.1471-0528.2012.03368.x
  • Penrose, R., Beatty, L., Mattiske, J., & Koczwara, B. (2013). The Psychosocial Impact of Cancer-Related Infertility on Women. Clinical Journal of Oncology Nursing17(2). doi: 10.1188/13.CJON.188-193
  • Pérez-Andújar, A., Newhauser, W.D., Taddei, P.J., Mahajan, A., & Howell, R. M. (2013). The predicted relative risk of premature ovarian failure for three radiotherapy modalities in a girl receiving craniospinal irradiation. Physics in Medicine and Biology, 58, 3107–3123. doi: 10.1088/0031-9155/58/10/3107
  • Perz, J., Ussher, J., & Gilbert, E. (2014). Loss, uncertainty, or acceptance: subjective experience of changes to fertility after breast cancer. European Journal of   Cancer Care23(4), 514-522. doi: 10.1111/ecc.12165
  • Pieterse, A. H., de Vries, M., Kunneman, M., Stiggelbout, A. M., & Feldman-Stewart, D. (2013). Theory-informed design of values clarification methods: a cognitive psychological perspective on patient health-related decision making. Social Science & Medicine77, 156-163. doi: 10.1016/j.socscimed.2012.11.020
  • Pluye, P., Robert, E., Cargo, M., Bartlett, G., O'Cathain, A., Griffiths, F., Boardman, F., & Gagnon, M. P. Rousseau MC Proposal: A Mixed Methods Appraisal    Tool for Systematic Mixed Studies Reviews (2011) [online]. Available at: http://mixedmethodsappraisaltoolpublic.pbworks.com. (14 January 2016, date last accessed).
  • Pollard, S., Bansback, N., & Bryan, S. (2015). Physician attitudes toward shared decision making: a systematic review. Patient education and           counselling98(9), 1046-1057. doi: 10.1016/j.pec.2015.05.004
  • Portocarrero, M. E. L., Garvelink, M. M., Perez, M. M. B., Giguère, A., Robitaille, H., Wilson, B. J., Rousseau, F., & Légaré, F. (2015). Decision aids that support decisions about prenatal testing for Down syndrome: an environmental scan. BMC medical informatics and decision making15(1), 76. doi: 10.1186  /s12911-015-0199-6
  • Practice Committees of American Society for Reproductive Medicine and the Society for Assisted Reproduction. (2013a). In vitro maturation: A committee opinion. Fertility and Sterility, 99, 663–666. doi: 10.1016/j.fertnstert.2012.12.031
  • Practice Committees of American Society for Reproductive Medicine and the Society for Assisted Reproduction. (2013b). Mature oocyte cryopreservation: A guideline. Fertility and Sterility, 99, 37–43. doi: 10.1016/j.fertnstert.2012.09.02    8
  • Practice Committees of American Society for Reproductive Medicine and the Society for Assisted Reproduction. (2014). Ovarian tissue cryopreservation: A committee opinion. Fertility and Sterility, 101, 1237–1243. doi: 10.1016/j.fertns      tert.2014.02.052
  • Quinn, G. P., Murphy, D., Knapp, C., Stearsman, D. K., Bradley-Klug, K. L., Sawczyn, K., & Clayman, M. L. (2011). Who decides? Decision making and fertility preservation in teens with cancer: a review of the literature. Journal of Adolescent Health49(4), 337-346. doi: 10.1016/j.jadohealth.2011.01.005
  • Quinn, G. P., Vadaparampil, S. T., Malo, T., Reinecke, J., Bower, B., Albrecht, T., & Clayman, M. L. (2012). Oncologists' use of patient educational materials about cancer and fertility preservation. PsychoOncology21(11), 1244-1249. doi: 10.1002/pon.2022
  • Quinn, G, P., Vadaparampil, S, T., Sehovic, I., Clayman, M, L. Chapter 3: patient and family      tools to aid in education and decision-making about oncofertility. In: Woodruff TK, Clayman ML, Waimey KE, editors. Oncofertility communication–sharing information and building relationships across disciplines. New York: Springer; 2014. p. 35–48.
  • Quinn, M. M., Cakman, H., Letourneau, J. M., Cedars, M. I., & Rosen, M. P. (2017). Response to ovarian stimulation is not impacted by a breast cancer diagnosis. Human Reproduction, 32, 568–574. doi: 10.1093/humrep/dew355
  • Reulen, R. C., Zeegers, M. P., Wallace, W. H., Frobisher, C., Taylor, A. J., Lancashire, E. R., Winter, D. L., & Hawkins, M. M. (2009). Pregnancy outcomes among adult survivors of childhood cancer in the British childhood cancer survivor study. Cancer Epidemiology, Biomarkers and Prevention, 18, 2239–2247. doi: 10.1158/1055-9965
  • Roberts, J., Ronn, R., Tallon, N., & Holzer, H. (2015). Fertility preservation in reproductive age woman facing gonadotoxic treatments. Current Oncology, 22, 294–304. doi: 10.3747/co.22.2334
  • Royal College of Physicians, The Royal College of Radiologists, Royal College of Obstetricians and Gynaecologists. (2007). The effects of cancer treatment on reproductive functions: Guidance on management. Report of a Working Party. Retrieved from https://www.rcr.ac.uk/system/files/publication/field_publication_files/Cancer_fertility_effects_Jan08.pdf 
  • Rothert, M. L., Holmes‐Rovner, M., Rovner, D., Kroll, J., Breer, L., Talarczyk, G., Schmitt, N., Padonu, G., & Wills, C. (1997). An educational intervention as decision support for menopausal women. Research in Nursing & Health, 20         (5), 377-387. doi: 10.1002/(SICI)1098-240X(199710)20:5<377::AIDNUR2>3 .0.C;2-L
  • Ruddy, K. J., Gelber, S. I., Tamimi, R. M., Ginsburg, E. S., Schapira, L., Come, S. E., Borges, V. F., Meyer, M. E., & Partridge, A. H. (2014). Prospective study of fertility concerns and preservation strategies in young women with breast cancer. Journal of Clinical Oncology, 32, 1151–1156. doi: 10.1200/JCO.2013.52.8877
  • Sato, S., Itamochi, H., & Sugiyama, T. (2016). Fertility-sparing surgery for uterine cervical cancer. Future Oncology12(19), 2345-2355. doi: 10.2217/fon-2016-0260
  • Sbaffi, L., & Rowley, J. (2017). Trust and credibility in web-based health information: a review and agenda for future research. Journal of Medical Internet Research19(6), e218. doi: 10.2196/jmir.7579
  • Scheier, M. F., Carver, C. S., & Bridges, M. W. (1994). Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): a reevaluation of the Life Orientation Test. Journal of Personality and Social Psychology, 67(6), 1063.
  • Schmidt, K. T., & Anderson, C. Y. (2012). Recommendations for fertility preservation in patients with lymphomas. Journal of Assisted Reproduction and Genetics, 29, 473–477. doi: 10.1007/s10815-012-9808-9
  • Schmidt, R., Richter, D., Sender, A., & Geue, K. (2016). Motivations for having children after cancer–a systematic review of the literature. European Journal of Cancer Care25(1), 6-17. doi: 10.1111/ecc.12276
  • Scott, B. Readability formulas 2018. Available from http://www.readabilityformulas.com. Accessed 17 May 2018.
  • Scottish Intercollegiate Guidelines Network. (2013). Long term follow up of survivors of childhood cancer. Retrieved from http://www.sign.ac.uk/assets/sign132.pdf
  • Selby, P., Board, R, E., Velikova, G. Chapter 1: Patient-centred and integrated cancer care. In: Velikova A, Followfield L, Younger J, Board RE, Selby P,       editors. Problem solving in patient-centred and integrated cancer care. Oxfordshire: EBN Health; 2018. p. 1–5.
  • Sepucha, K. R., Abhyankar, P., Hoffman, A. S., Bekker, H. L., LeBlanc, A., Levin, C. A., Ropka, M., Shaffer, V. A., Sheridan, S. L., Stacey, D., Stalmeier, P., Vo, H., Wills, C. E., & Thomson, R. (2018). Standards for UNiversal reporting of patient Decision Aid Evaluation studies: the development of SUNDAE Checklist. BMJ Quality and Safety27(5), 380-388. doi: 10.1136/bmjqs-2017-006986
  • Shimizu, C., Bando, H., Kato, T., Mizota, Y., Yamamoto, S., & Fujiwara, Y. (2013). Physicians’ knowledge, attitude, and behavior regarding fertility issues for           young breast cancer patients: a national survey for breast care specialists. Breast Cancer20(3), 230-240. doi: 10.1007/s12282-011-0328-8
  • Shou, H., Chen, Y., Chen, Z., Zhu, T., & Ni, J. (2015). Laparoscopic ovarian transposition in young women with cervical squamous cell carcinoma treated by primary pelvic irradiation. European Journal of Gynaecological Oncology,       36, 25–29. doi: 10.12892/ejgo2607.2015
  • Signorello, L. B., Cohen, S. S., Bosetti, C., Stovall, M., Kasper, C. E., Weathers, R. E., Whitton, J. A., Green, D. M., Donaldson, S. S., Mertens, A. C., Robison, L. L.,& Boice, J.D. Jr. (2006). Female survivors of childhood cancer: preterm    birth and low birth weight among their children. Journal of the National Cancer Institute, 98, 1453–1461. doi: 10.1093/jnci/djj394
  • Signorello, L. B., Mulvihill, J. J., Green, D. M., Munro, H. M., Stovall, M., Weathers, R. E., Mertens, A. C., Whitton, J. A., Robison, L. L., & Boice, J. D. Jr. (2012). Congenital anomalies in the children of cancer survivors: A report          from the childhood cancer survivor study. Journal of Clinical Oncology, 30, 239–245. doi: 10.1200/JCO.2011.37.2938
  • Siminoff, L, A., Kissane. D., Bultz, B. D. The ethics of communication in cancer and palliative care. In: Handbook of Communication in Oncology and Palliative Care . New York, NY: Oxford University Press, 2010;51–61.
  • Sobota, A., & Ozakinci, G. (2014). Fertility and parenthood issues in young female cancer patients—a systematic review. Journal of Cancer Survivorship8(4), 707-721. doi: 10.1007/s11764-014-0388-9
  • Snyder, K. A., & Tate, A. L. (2013). What to do now? How women with breast cancer make fertility preservation decisions. Journal of Family Planning and Reproductive Health Care39(3),           172-178. doi: 10.1136/jfprhc-2011-100286
  • Snyder, K, A., Tate, A. Chapter 4: Cancer-related infertility and young women: strategies for discussing fertility preservation. In: Woodruff TK, Clayman ML, Waimey KE, editors. Oncofertility communication–sharing information and building relationships across disciplines. New York: Springer; 2014. p. 49–60.
  • Stacey, D., Légaré, F., Lewis, K., Barry, M. J., Bennett, C. L., Eden, K. B., Holmes-Rovner, M., Llewellyn-Thomas, H., Lydddiatt, A., Thomson, R. & Trevena, L. (2017). Decision aids for people facing health treatment or screening decisions. Cochrane database of systematic reviews, (4). doi: 10.1002/14651858.CD001431.pub5
  • Stansfield, C., Dickson, K., & Bangpan, M. (2016). Exploring issues in the conduct of website searching and other online sources for systematic reviews: how can we be systematic?. Systematic reviews5(1), 191. doi: 10.1186/s13643-016-0371-9
  • Stern, C. J., Gook, D., Hale, L. G., Agresta, F., Oldham, J., Rozen, G., & Jobling, T. (2013). First reported clinical pregnancy following heterotopic grafting of cryopreserved ovarian tissue in a woman after a bilateral oophorectomy. Human Reproduction, 28, 2996–2999. doi: 10.1093/humrep/det360
  • Stiggelbout, A, M. Chapter 11: assessing Patients’ preferences. In: Chapman GB, Sonnenberg FA, editors. Decision making in health care: theory, psychology, and applications. Cambridge: Cambridge University Press; 2000. p. 289–312.
  • Tan, P. L., Wagner, J. E., Auerbach, A. D., Defor, T. E., Slungaard, A., & Macmillan, M. L. (2006). Successful engraftment without radiation after fludarabine-based regimen in Fanconi anemia patients undergoing genotypically identical donor hematopoietic cell transplantation. Pediatric Blood and Cancer, 46, 630–636. doi: 10.1002/pbc.20538
  • Tao, T., & Del Valle, A. (2008). Human oocyte and ovarian tissue cryopreservation and its application. Journal of Assisted Reproduction and Genetics25(7), 287-296. doi: 10.1007/s10815-008-9236-z
  • Terenziani, M., Piva, L., Meazza, C., Gandola, L., Cefalo, G., & Merola, M. (2009). Oophoropexy: A relevant role in preservation of ovarian function after pelvic irradiation. Fertility and Sterility, 91, 15–16. doi: 10.1016/j.fertnstert.2008.09.029
  • The International Patient Decision Aid Standards (IPDAS) Collaboration. Criteria for Judging the Quality of Patient Decision Aids Checklist 2005. Available from: http://ipdas.ohri.ca/ipdas_checklist.pdf. Accessed 27 Mar 2018
  • Thewes, B., Meiser, B., Rickard, J., & Friedlander, M. (2003). The fertility‐and menopause‐related information needs of younger women with a diagnosis of breast cancer: a qualitative study. PsychoOncology: Journal of the     Psychological, Social and Behavioral Dimensions of Cancer12(5), 500-511. doi: 10.1002/pon.685
  • Thewes, B., Meiser, B., Taylor, A., Phillips, K. A., Pendlebury, S., Capp, A., Dalley, D., Goldstein, D., Baber, R., & Friedlander, M. L. (2005). Fertility-and menopause-related information needs of younger women with a diagnosis of early breast cancer. Journal of Clinical Oncology23(22), 5155-5165. doi: 10.1200/JCO.2005.07.773
  • Trevena, L. J., Zikmund-Fisher, B. J., Edwards, A., Gaissmaier, W., Galesic, M., Han, P. K., King, J., Lawson, M. L., Linder, S. K., Lipkus, I., Ozanne, E.,            Peters, E., Timmermans, D., & Woloshin, S. (2013). Presenting quantitative information about decision outcomes: a risk communication primer for patient decision aid developers. BMC Medical Informatics and Decision Making13(2), S7. doi: 10.1186/1472-6947-13-S2-S7
  • Tschudin, S., & Bitzer, J. (2009). Psychological aspects of fertility preservation in men and women affected by cancer and other life-threatening diseases. Human Reproduction Update15(5), 587-597. doi: 10.1093/humupd/dmp015
  • Tschudin, S., Bunting, L., Abraham, J., Gallop-Evans, E., Fiander, A., & Boivin, J. (2010). Correlates of fertility issues in an internet survey of cancer survivors. Journal of Psychosomatic Obstetrics & Gynecology31(3), 150-157. doi: 10.3109/0167482X.2010.503910
  • Turan, V., Bedoschi, G., Moy, F., & Oktay, K. (2013). Safety and feasibility of performing two consecutive ovarian stimulation cycles with the use of letrozole-gonadotropin protocol for fertility preservation in breast cancer patients. Fertility and Sterility, 100, 1681–1685. doi: 10.1016/j.fertnstert.2013.08.030
  • Vadaparampil, S. T., Christie, J., Quinn, G. P., Fleming, P., Stowe, C., Bower, B., & Pal, T. (2012). A pilot study to examine patient awareness and provider discussion of the impact of cancer treatment on fertility in a registry-based   sample of African American women with breast cancer. Supportive Care in Cancer20(10), 2559-2564. doi: 10.1007/s00520-012-1380-4
  • Van der Ven, H., Liebenthron, J., Beckmann, M., Toth, B., Korell, M., Krussel, J., Frambach, K. T., Kupka, M., Hohl, M. K., Winkler-Crepaz, K., Seitz, S., Dogan, A., Griesinger, G., Häberlin, F., Henes, M., Schwab, R., Sütterlin, M., von Wolff, M., & Dittrich, R. (2016). Ninety-five orthotopic transplantations in 74 women of ovarian tissue after cytotoxic treatment in a fertility preservation network: Tissue activity, pregnancy and delivery rates. Human Reproduction, 31, 2031–2041. doi: 10.1093/humrep/dew165
  • van Erven, B., Gubbels, C. S., van Golde, R. J., Dunselman, G. A., Derhaag, J. G., de Wert, G.,  Geraedts, J. P., Bosch, A. M., Treacy, E. P., Welt, C. W., Berry, G. T., & Rubio-Gozalbo, M. E. (2013). Fertility preservation in female classic galactosemia patients. Orphanet Journal of Rare Diseases, 8, 107. doi: 10.1186/1750-1172-8-107
  • van Wolff, M., Montag, M., Dittrich, R., Denschlag, D., Nawroth, F., & Lawrenz, B. (2011). Fertility preservation in women—a practical guide to preservation techniques and therapeutic strategies in breast cancer, Hodgkin’s lymphoma and borderline ovarian tumours by the fertility preservation network FertiPROTEKT. Archives of Gynecology and Obstetrics, 284, 427–435. doi: 10.1007/s00404-011-1874-1
  • Vautier, S., Raufaste, E., & Cariou, M. (2003). Dimensionality of the Revised Life Orientation Test and the status of filler items. International Journal of Psychology38(6), 390-400. doi: 10.1080/00207590344000222
  • Vogt, K. S., Hughes, J., Wilkinson, A., Mahmoodi, N., Skull, J., Wood, H., McDougall, S., Slade, P., Greenfield, D. M., Pacey, A., Ledger, W., & Jones., G. L. (2018). Preserving fertility in women with cancer (PreFer): Decision‐making and patient‐reported outcomes in women offered egg and embryo freezing prior to cancer treatment. PsychoOncology27(12), 2725-2732. doi: 10.1002/pon.4866
  • Volk, R. J., & Coulter, A. (2018). Advancing the science of patient decision aids through reporting guidelines. BMJ Quality & Safety, 27, 337-339. doi: 10.1136/bmjqs-2017-007657
  • Waimey, K. E., Smith, B. M., Confino, R., Jeruss, J. S., & Pavone, M. E. (2015). Understanding fertility in young female cancer patients. Journal of Women's Health24(10), 812-818. doi: 10.1089/jwh.2015.5194
  • Wallace, W. H., Smith, A., Kelsey, T., Edgar, A., & Anderson, R. (2014). Fertility preservation for girls and young women with cancer: Population-based validation of criteria for ovarian tissue cryopreservation. The Lancet, 15, 1129–1136. doi: 10.1016/S1470-2045(14)70334-1
  • Wennerholm, U.B., Söderström-Anttila, V., Bergh, C., Aittomäki, K., Hazekamp, J., Nygren, K.G., Selbing, A.,& Loft, A. (2009). Children born after cryopreservation of embryos or oocytes: A systematic review of outcome data. Human Reproduction, 24, 2158–2172. doi: 10.1093/humrep/dep125
  • World Health Organization. The mandate for health literacy 2016. Available from: http://www.who.int/healthpromotion/conferences/9gchp/health-literacy/en. Accessed 17 May 2018.
  • Wilkes, S., Coulson, S., Crosland, A., Rubin, G., & Stewart, J. (2010). Experience of fertility preservation among younger people diagnosed with cancer. Human Fertility13(3), 151-158. doi: 10.3109/14647273.2010.503359
  • Williams, C. L., Bunch, K. J., Stiller, C. A., Murphy, M. F., Botting, B. J., Wallace, W. H., Davies, M., & Sutcliff, A. G. (2013). Cancer risk among children born after assisted conception. The New England Journal of Medicine, 369, 1819–1827. doi: 10.1056/NEJMoa1301675
  • Willows, K., Lennox, G., & Covens, A. (2016). Fertility-sparing management in cervical cancer: Balancing oncologic outcomes with reproductive success. Gynecologic Oncology Research and Practice, 3, 9. doi: 10.1186/s40661-016-0030-9
  • Winterbottom, A., Conner, M., Mooney, A., & Bekker, H. L. (2007). Evaluating the quality of patient leaflets about renal replacement therapy across UK renal units. Nephrology Dialysis Transplantation22(8), 2291-2296. doi: 10.1093/ndt/gfm095
  • Winterbottom, A. E., Gavaruzzi, T., Mooney, A., Wilkie, M., Davies, S. J., Crane, D., Tupling, K., Baxter, P. D., Meads, D. M., Mathers, N., & Bekker, H. L. (2016). Patient acceptability of the Yorkshire Dialysis Decision Aid (YoDDA)            booklet: a prospective non-randomized comparison study across 6 predialysis services. Peritoneal Dialysis International36(4),           374-381. doi: 10.3747/pdi.2014.00274
  • Winther, J. F., Olsen, J. H., Wu, H., Shyr, Y., Mulvihill, J. J., Stovall, M., Nielsen, A., Schmiegelow, M., & Boice, J. D. Jr. (2012). Genetic disease in the children of Danish survivors of childhood and adolescent cancer. Journal of Clinical Oncology, 30, 27–33. doi: 10.1200/JCO.2011.35.0504
  • Witteman, H. O., Gavaruzzi, T., Scherer, L. D., Pieterse, A. H., Fuhrel-Forbis, A., Chipenda Dansokho, S., Exe, N., Kahn, V. C., Feldman-Stewart, D., Col, N. F., Turgeon, A. F., & Fagerlin, A. (2016). Effects of design features of explicit       values clarification methods: a systematic review. Medical Decision    Making36(6), 760-776. doi: 10.1177/0272989X16634085
  • Wo, J. Y., & Viswanathan, A. N. (2009). Impact of radiotherapy on fertility, pregnancy, and neonatal outcomes in female cancer patients. International Journal of Radiation Oncology Biology Physics, 73, 1304–1312. doi: 10.1016 /j.ijrobp.2008.12.016
  • Woodard, T. L., Hoffman, A. S., Covarrubias, L. A., Holman, D., Schover, L., Bradford, A., Hoffman, D. B., Mathur, A., Thomas, J., & Volk, R. J. (2018).      The Pathways fertility preservation decision aid website for women with            cancer: development and field testing. Journal of Cancer Survivorship12(1), 101-114. doi: 10.1007/s11764-017-0649-5
  • Woodruff, T. K. (2010). The Oncofertility Consortium—addressing fertility in young people with cancer. Nature reviews Clinical oncology7(8), 466. doi: 10.1038/ nrclinonc.2010.81
  • Woodruff, T. K., Clayman, M. L., & Waimey, K. E. (Eds.). (2013). Oncofertility communication: Sharing information and building relationships across disciplines. Springer Science & Business Media.
  • Woodruff, T. K., Clayman, M. L., & Waimey, K. E. (2014). Oncofertility communication: Sharing information and building relationships across disciplines. New York, NY: Springer
  • Yasmin, E., Balachandren, N., Davies, M. C., Jones, G. L., Lane, S., Mathur, R., Webber, L., & Anderson, R. A. (2018). Fertility preservation for medical reasons in girls and women: British fertility society policy and practice guideline. Human Fertility21(1), 3-26. doi: 10.1080/14647273.2017.1422297
  • Yee, S., Abrol, K., McDonald, M., Tonelli, M., & Liu, K. E. (2012). Addressing oncofertility needs: views of female cancer patients in fertility preservation. Journal of Psychosocial Oncology30(3), 331-346. doi: 10.1080/07347332.2012.664257
  • Yoon, M. (2012). Development of and current status of proton therapy for lung cancer in Korea. Thoracic Cancer, 3, 1–7. doi: 10.1111/j.1759-714.2011.00085.x
  • Youssef, M.A., Van der Veen, F., Al-Inany, H. G., Griesinger, G., Mochtar, M. H., Aboulfoutouh, I., & van Wely, M. (2014). Gonadotropin-releasing hormone       agonist versus HCG for oocyte triggering in antagonist assisted reproductive technology cycles. Cochrane Database Systematic Review, CD008046. doi: 10.1002/14651858.CD008046.pub4
  • Zdenkowski, N., Butow, P., Tesson, S., & Boyle, F. (2016). A systematic review of decision aids for patients making a decision about treatment for early breast cancer. The Breast26, 31-45. doi: 10.1016/j.breast.2015.12.007
  • Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica67(6), 361-370. doi: 10.1111/j.1600-0447.1983.tb09716.x

Who we are

The wider team involved in this study is multi-disciplinary and has extensive experience clinically and methodologically in the fields of adult and paediatric oncology, haematology, reproductive medicine, psychology and decision-making, and health services research. Breast Cancer Care, the North Trent Cancer Research Network Consumer Research Panel, Weston Park Hospital Cancer Charity and the Independent Cancer Patients’ Voice charity also collaborated on this study.


Cancer, Fertility and Me

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Cancer, Fertility and Me

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