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Sporting memories dementia 2

Dementia Care and Services Research

Our portfolio of dementia care and services research covers a broad range of research projects addressing all aspects of dementia care and service delivery from informal care provided by families in the community to hospital and long-term care provision.

We have particular expertise in research in dementia workforce development; delivery and improvement of dementia care in care homes, hospitals and other formal service settings; the care needs of those with both dementia and cancer and assistive technologies in dementia care.

Current Research Programmes

Plus Icon What Works? in dementia training and education

Full title: Understanding effective dementia workforce education and training: A formative evaluation

Chief Investigator: Professor Claire Surr

Funder: Department of Health Policy Research Programme

Funding amount: £462,757

The What Works? in dementia training and education study was commissioned by the Department of Health Policy Research Programme on behalf of Health Education England. The study aims to identify the ingredients that are most likely to lead to effective dementia education and training for the health and social care workforce.

To read more about the study please visit What Works?.

Plus Icon The DCM EPIC Trial

Full title: Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping (DCM) to Enable Person-centred Care for people with dementia and staff: A UK cluster randomised controlled trial In Care Homes (DCM-EPIC trial)

Chief Investigator: Professor Claire Surr

Funder: National Institute for Health Research Health Technology Assessment Programme (NIHR HTA)

Funding amount: £2,434,490

The DCM EPIC trial aims to examine the effectiveness and cost effectiveness of training care homes staff to use the practice development tool ‘Dementia Care Mapping’ in order to improve delivery of person-centred care in care home settings. 

The EPIC Trial team were awarded ‘Research Team of the Year’ in the Educate North and UK Leadership Awards 2017 for the regional impact of their research. 

To read more about the study please visit EPIC Trial.

Plus Icon The Empowering Families Programme

Full title: A post-diagnosis training programme to meet the educational needs of carers of people with dementia. The Empowering Families Affected by Dementia Education Programme.

Chief Investigator: Professor Claire Surr

Funder: Department of Health

Funding amount: £77,980

There are few opportunities provided for informal carers of people with dementia to receive structured education and support to assist them in their role. This project involves revising, delivering and evaluating a training programme that is designed to meet the educational needs of carers of people with dementia post diagnosis. The programme is based on the Plus (Psychosis, Learning, Understanding and Support) model that has been delivered successfully to carers of people living with psychosis over a number of years within the Leeds and York region. It has consistently evaluated well for its ability to enable carers to feel prepared and confident to take on a caring role for someone with a complex, long-term mental-health condition. The programme has been co-designed and co-delivered with carers of people living with dementia through our collaboration on this project with TIDE and Carers Leeds.

PHD Students

Plus Icon Mollie Price

Understanding and addressing the psychosocial support needs and wellbeing of caregivers of people with comorbid cancer and dementia.

School: School of Social Sciences

Director of Studies: Dr Laura Ashley

Supervisors: Professor Brendan Gough and Professor Claire Surr

Plus Icon Gill Maidens

To what extent are Person Centred Care Principles, Choice and Inclusion evidenced in the assessment and decision making process for placement in permanent Residential Care for those living with Dementia in England.

School: School of Health and Community Studies

Director of Studies: Professor Claire Surr

Supervisors: Dr Sarah Burden

Research Case Studies

Plus Icon Case Studies

The following case studies present examples of research under the dementia care and services theme completed since 2015.

A multi-site evaluation of the Person, Interactions and Environment (PIE) tool to improve person-centred care for people with dementia admitted to acute hospital wards. 

Chief Investigator: Professor John Young, Bradford Institute for Health Research. Co-investigator: Professor Claire Surr.

Funder: National Institute for Health Research, Health Services and Development Research (NIHR HS&DR).

Care quality is unacceptably low for people with dementia in acute hospitals. As part of a national audit of care received by people with dementia in general hospitals (England and Wales) 2011, we developed a qualitative observational tool called PIE (to look at the Person, their Interactions with staff and the immediate Environment). Although the PIE tool was demonstrated as useful and feasible to assess existing practice, translating action planning at ward level to effect practice and organisational change was not examined; and neither has the PIE programme s impact on the care experience of patients, their families/ caregivers and staff, or on patients health outcomes. The overall objective of this research is to implement and evaluate the PIE tool and linked change process (PIE programme) to improve person-centred care for people with dementia in general hospital wards. This is independent research funded by the National Institute for Health Research (NIHR) Service Delivery Organisation (SDO).

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