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Dr Rachael Kelley

Reader

Rachael is a Reader in the School of Health. Her research focuses on improving the care and support offered to people living with dementia and their families, predominantly in hospitals and other healthcare settings. This includes work to improve the care of people living with dementia and comorbid health conditions such as cancer. Prior to starting her research career she was a qualified mental health nurse specialising in the care of people living with dementia.

Rachael has worked in applied health research since 2004, initially in the School of Medicine at the University of Leeds (where she retains a visiting lecturer position) and subsequently in the Centre for Dementia Research at Leeds Beckett University. She has worked on many qualitative and quantitative research projects during this time, predominantly funded by the National Institute for Health Research (NIHR). She is a member of a NIHR Research for Patient Benefit funding panel (Yorkshire and North East Region) as well as undertaking regular reviews for numerous academic journals and research funding panels. She also teaches health research methods to undergraduate and postgraduate students.

Current Teaching

Rachael teaches applied health research methods across numerous undergraduate and postgraduate courses within the School of Health. She also runs workshops on ethnography at a university level, and teaches on a postgraduate certificate in health research at the University of Leeds.

Postgraduate Student supervision:

Rachael supervises postgraduate student projects in applied health research with a focus on her research interests.

Current & recent PhD and DClinPsychol students:

PhD Thesis: Lindley, D. The involvement of people living with dementia in decision-making in ambulance services (2022-present)
DClin Psychology Doctoral Thesis: Own, H. Service users and families’ experiences of culturally adapted dementia assessments. (2022-present)
PhD Thesis: Butterworth, L. Improving patient transport services for people living with dementia (2020-present)
PhD Thesis: Crossland, J. Development of an intervention to support family carers whose relative with dementia moves into a care home (2019-present)
PhD Thesis: Platt, R. The care and support needs of residential care home residents with comorbid cancer and dementia: An ethnographic study (2019-present)
DClin Psychology Doctoral Thesis: Crane R. Staff experiences of caring for people with dementia who are distressed (2018-2020; completed)
DClin Psychology Doctoral Thesis, Higgins, E. Disclosing Self-Harm to Non-Professionals in an Adult Sample (2018-2020; completed)
DClin Psychology Doctoral Thesis: Jenkins, E. Comparing conveyance and non-conveyance to the Emergency Department for self-harm (2015-2017; completed)

Research Interests

Rachael's research interests centre around improving the care and support offered to people living with dementia and their families in hospitals and other health and social care settings. Her prior research includes an NIHR doctoral research study using ethnography to explore family involvement in hospital care for people living with dementia, NIHR RfPB-funded ethnographic and quantitative studies of care experiences and outcomes for people with co-morbid dementia and cancer, and work on the DCM-EPIC Trial; a HTA-funded multi-centre randomised clinical trial to establish the effectiveness of a care improvement tool called Dementia Care Mapping (DCM) in care homes.

She is currently working on three NIHR-funded studies:

A mixed methods research study exploring treatment decision making in Memory Assessment Services for people living with dementia and their families
An ethnographic study exploring experiences of restrictive practices during routine hospital care for people living with dementia
A qualitative study exploring and identifying ways to optimise community-based cancer care for people living with dementia

Research Funding:

2023-24 NIHR Research for Patient Benefit (£153,461) – Understanding and identifying ways to optimise cancer recognition, referral, and management for people with dementia in primary and community care
2022-24 NIHR Health Services and Delivery Research (£1,053,221) – Understanding the every day use of restrictive practices in the care of people living with dementia during a hospital admission
2021-22 NIHR Research for Patient Benefit (£149,169) – Effective communication of pharmaceutical treatment uncertainty in Memory Assessment Services
2019-21 Leeds University Business School Challenge Fund (£26,000) - Applying computer modelling, simulation and socio-technical systems analysis to improve NHS dementia care outcomes
2018-19 NIHR Research for Patient Benefit (£155,116) Effective clinical cancer treatment, care and management for people with comorbid cancer and dementia
2015-16 NIHR Clinical Trials Fellowship (£41,620) Complex Interventions Division, Leeds Institute of Clinical Trials Research, University of Leeds
2010-11 West Yorkshire Research and Development Consortium Funding (£43,740) Mortality follow up of people attending hospital following self-harm
2009-15 NIHR Doctoral Research Fellowship (£223,434) Involving families of people with dementia in general hospital care

0113 81 25909
R.Kelley@leedsbeckett.ac.uk
Calverley, 521, City Campus

School of Health

Ask Me About

Dementia
Mental health
Nursing

Selected Outputs

Ashley L; Surr C; Kelley R; Price M; Griffiths A; Fowler N; Giza D; Neal R; Martin C; Hopkinson J (2022) Cancer care for people with dementia: literature overview and recommendations for practice and research. CA: A Cancer Journal for Clinicians, pp. 1-19.

https://doi.org/10.3322/caac.21767
Collinson M; Mason E; Kelley R; Griffiths AW; Ashley L; Henry A; Inman H; Cowdell F; Hennell J; Jones L (2022) Characteristics and general practice resource use of people with comorbid cancer and dementia in England: a retrospective cross-sectional study. BMC Primary Care, 23

https://doi.org/10.1186/s12875-022-01882-w
Griffiths AW; Ashley L; Kelley R; Cowdell F; Collinson M; Mason E; Inman H; Henry A; Farrin A; Surr C (2021) Balancing the needs of individuals and services in cancer treatment for people with dementia: a focused ethnographic study. International Journal of Nursing Studies, 121 pp. 104006.

https://doi.org/10.1016/j.ijnurstu.2021.104006
Kelley R; Godfrey M; Young J (2021) Knowledge Exchanges and Decision-Making Within Hospital Dementia Care Triads: An Ethnographic Study. The Gerontologist, 61 (6), pp. 954-964.

https://doi.org/10.1093/geront/gnaa216
Kelley R; Surr C; Griffiths A; Ashley L; Procter A (2021) Providing cancer treatment and care to people living with cancer and dementia: challenges and research-based recommendations. Cancer Nursing Practice

https://doi.org/10.7748/cnp.2021.e1754
Griffiths AW; Robinson O; Shoesmith E; Kelley R; Surr C (2021) Staff experiences of implementing Dementia Care Mapping to improve the quality of dementia care in care homes: a qualitative process evaluation. BMC Health Services Research, 21

https://doi.org/10.1186/s12913-021-06152-6
Ashley L; Kelley R; Griffiths AW; Cowdell F; Henry A; Inman H; Hennell J; Ogden M; Walsh M; Jones L (2020) Understanding and identifying ways to improve hospital-based cancer care and treatment for people with dementia: an ethnographic study. Age and Ageing

https://doi.org/10.1093/ageing/afaa210
Surr C; Griffiths AW; Kelley R; Ashley L; Cowdell F; Henry A; Inman H; Collinson M; Mason E; Farrin AJ (2020) Navigating cancer treatment and care when living with comorbid dementia: an ethnographic study. Supportive care in cancer

https://doi.org/10.1007/s00520-020-05735-z
Kelley R; Griffiths AW; Shoesmith E; Couch E; Robinson O; Perefct D; Surr C (2020) The influence of care home managers on the implementation of a complex intervention: Findings from the process evaluation of a randomised controlled trial of Dementia Care Mapping. BMC Geriatrics

https://doi.org/10.1186/s12877-020-01706-5
Griffiths A; Ashley L; Kelley R; Cowdell F; Collinson M; Mason E; Farrin A; Henry A; Inman H; Surr C (2020) Decision-making in cancer care for people living with dementia. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer

https://doi.org/10.1002/pon.5448
Surr C; Holloway I; Walwyn REA; Griffiths AW; Meads D; Martin A; Kelley R; Ballard C; Fossey J; Burnley N (2020) Effectiveness of Dementia Care Mapping™ to reduce agitation in care home residents with dementia: an open-cohort cluster randomised controlled trial. Aging and Mental Health

https://doi.org/10.1080/13607863.2020.1745144
Surr C; Kelley R; Griffiths A; Ashley L; Cowdell F; Henry A; Collinson M; Mason E; Farrin A (2020) Enabling people with dementia to access and receive cancer treatment and care : The crucial role of supportive networks. Journal of Geriatric Oncology

https://doi.org/10.1016/j.jgo.2020.03.015
Surr CA; Holloway I; Walwyn REA; Griffiths AW; Meads D; Kelley R; Martin A; McLellan V; Ballard C; Fossey J (2020) Dementia Care Mapping™ to reduce agitation in care home residents with dementia: the EPIC cluster RCT. Health Technology Assessment, 24 (16), pp. 1-172.

https://doi.org/10.3310/hta24160
Surr CA; Holloway I; Walwyn REA; Griffiths A; Meads D; Kelley R; Martin A; McLellan V; Ballard C; Fossey J (2020) Dementia Care Mapping™ to reduce agitation in care home residents with dementia: The DCM™ EPIC cluster randomised controlled trial. Health Technology Assessment
Meads D; Martin A; Griffiths A; Kelley R; Creese B; Robinson L; McDermid J; Walwyn R; Ballard C; Surr C (2019) Cost-effectiveness of Dementia Care Mapping in care home settings – Evaluation of a randomised controlled trial. Applied Health Economics and Health Policy

https://doi.org/10.1007/s40258-019-00531-1
Surr C; Shoesmith E; Griffiths A; Kelley R; McDermid J; Fossey J (2019) Exploring the role of external experts in supporting staff to implement psychosocial interventions in care home settings: results from the process evaluation of a randomized controlled trial. BMC Health Services Research

https://doi.org/10.1186/s12913-019-4662-4
Griffiths A; Smith S; Martin A; Meads D; Kelley R; Surr C (2019) Exploring self-report and proxy-report quality of life measures for people living with dementia in care homes. Quality of Life Research

https://doi.org/10.1007/s11136-019-02333-3
Surr CA; Griffiths A; Kelley R; Holloway I; Walwyn REA; Martin A; McDermid J; Chenoweth L; Farrin AJ (2019) The implementation of Dementia Care MappingTM in a randomised controlled trial in long-term care: results of a process evaluation. American Journal of Alzheimer's Disease and Other Dementias

https://doi.org/10.1177/1533317519845725
Kelley R; Godfrey M; Young J (2019) The impacts of family involvement on general hospital care experiences for people living with dementia: An ethnographic study. International Journal of Nursing Studies

https://doi.org/10.1016/j.ijnurstu.2019.04.004
Griffiths A; Kelley R; Garrod L; Perfect D; Robinson O; Shoesmith E; McDermid J; Burnley N; Surr CA (2019) Barriers and facilitators to implementing Dementia Care Mapping in Care Homes: Results from the DCM EPIC Trial process evaluation. BMC Geriatrics, 19

https://doi.org/10.1186/s12877-019-1045-y
Surr CA; Griffiths AW; Kelley R (2018) Implementing Dementia Care Mapping as a practice development tool in dementia care services: A systematic review. Clinical Interventions in Aging

https://doi.org/10.2147/CIA.S138836
Owens D; Kelley R (2017) Predictive properties of risk assessment instruments following self-harm. Br J Psychiatry, 210 (6), pp. 384-386.

https://doi.org/10.1192/bjp.bp.116.196253
Birtwistle J; Kelley R; House A; Owens D (2017) Combination of self-harm methods and fatal and non-fatal repetition: A cohort study. Journal of Affective Disorders, 218 pp. 188-194.

https://doi.org/10.1016/j.jad.2017.04.027
Diggins E; Kelley R; Cottrell D; House A; Owens DW (2017) Age-related differences in self-harm presentations and subsequent management of adolescents and young adults at the emergency department. Journal of Affective Disorders, 208 pp. 399-405.

https://doi.org/10.1016/j.jad.2016.10.014
Owens D; Kelley R; Munyombwe T; Bergen H; Hawton K; Cooper J; Ness J; Waters K; West R; Kapur N (2015) Switching methods of self-harm at repeat episodes: Findings from a multicentre cohort study. Journal of Affective Disorders, 180 pp. 44-51.

https://doi.org/10.1016/j.jad.2015.03.051
Karasouli E; Owens D; Latchford G; Kelley R (2015) Suicide after nonfatal self-harm: A population case-control study examining hospital care and patient characteristics. Crisis, 36 (1), pp. 65-70.

https://doi.org/10.1027/0227-5910/a000285
Budd ST; Kelley R; Day R; Variend H; Dogra N (2011) Student attitudes to psychiatry and their clinical placements. Medical Teacher, 33 pp. e586-e592.
Lilley R; Owens D (2009) Services for assessment, aftercare and psychological treatment following self-harm. Psychiatry, Volume 8 (Issue 7), pp. 246-251.

http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B82Y7-4WM70BJ-6&_user=7523285&_coverDate=07/31/2009&_rdoc=1&_fmt=high&_orig=search&_sort=d&_docanchor=&view=c&_searchStrId=1263672825&_rerunOrigin=google&_acct=C000005458&_version=1&_urlVersion=0&_userid=7523285&md5=7fb238a90b9eec2c4d0e3afe1e9fcfee
Lilley R; Owens D; Horrocks J; House A; Noble R; Bergen H; Hawton K; Simkin S; Casey D; Murphy E (2008) Hospital care and repetition following self-harm: a multicentre comparison of self-poisoning and self-injury. The British Journal of Psychiatry, 192 pp. 440-445.

http://bjp.rcpsych.org/cgi/content/abstract/192/6/440
Kapur N; Murphy E; Cooper J; Bergen H; Hawton K; Simkin S; Casey D; Horrocks J; Lilley R; Noble R (2008) Psychosocial assessment following self-harm: results from the Multi-Centre Monitoring of Self-Harm Project. Journal of Affective Disorders, 106 (3), pp. 285-293.

http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6T2X-4PJ0BW9-1&_user=7523285&_coverDate=03%2F31%2F2008&_rdoc=1&_fmt=high&_orig=search&_sort=d&_docanchor=&view=c&_searchStrId=1263691086&_rerunOrigin=google&_acct=C000005458&_version=1&_urlVersion=0&_userid=7523285&md5=3951ab725e6db2734c21f0e683027f1c
Hawton K; Bergen H; Casey D; Simkin S; Palmer B; Cooper J; Kapur N; Horrocks J; House A; Lilley R (2007) Self-harm in England: a tale of three cities. Social Psychiatry and Psychiatric Epidemiology, 42 pp. 513-521.

http://www.ncbi.nlm.nih.gov/pubmed/17516016
Cooper J; Murphy E; Bergen H; Casey D; Hawton K; Owens D; Lilley R; Noble R; Kapur N (2007) The effect of using NHS number as the unique identifier for patients who self-harm: a multi-centre descriptive study. Clinical Practice and Epidemiology in Mental Health, 3 (16),

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2041945/