Alison was diagnosed with breast cancer in 2007 and was not given the opportunity for fertility preservation - she now understands that this policy has been altered within NHS Lothian. Hence her interest in fertility for younger women. Alison has been a member of Breast Cancer Care's Service User Research Partnership since 2010 and is studying for an MSc in Public Health and Health Promotion, which she really enjoys. Alison is also a member of Independent Cancer Patient Voices and is actively involved in representing Patient’s views on a number of research projects.
Dr Bob Phillips
Bob is a Senior Clinical Academic at CRD, and an Honorary Consultant in Paediatric / Teenage-Young Adult Oncology at Leeds Children's Hospital. His main area of work is in the development of individual participant data (IPD) meta-analysis, and the development of skills in appraisal and translation of clinical research in practice. He is the lead of the PICNICC collaboration, “Predicting Infectious Complications In Children with Cancer” which was formed by engaging international clinical and methodological experts, parent representatives and healthcare researchers to investigate primarily the patterns of risk in febrile neutropenia. The PICNICC collaboration consists of 22 different study groups from 15 countries and is actively engaged in involving new members from around the world to further develop its aims. This work develops the CRD research themes of methodological improvement in IPD meta-analysis and in improving outcomes in cancer medicine, and capacity building and translation of research in the NHS.
Bob has worked extensively to promote and teach evidence-based practice with the Centre for Evidence-based Medicine in Oxford, UK, and also the Centre for Evidence-based Child Health (Institute of Child Health, London, UK). He edits the evidence-based practice sections of the Archives of Diseases in Childhood, and is an associate editor of the journal. He has lectured in the UK, Europe, North America, Australia and the Nordic Countries on the subject of evidence-based practice, and has written widely on this.
Dr Dan Yeomanson
Dan is a paediatric oncologist with an interest in TYA issues. He is a member of the CCLG, sits on the TYAC Research and Registration Sub-Committee and is part of the Sheffield Children’s Hospital Young Person’s Working Group. As part of his role as an oncologist Dan has developed a focus on fertility preservation and has undertaken postgraduate training in paediatric palliative care. Dan works predominantly at SCH and continually seeks to build on links with WPH as the TYA service evolves.
Professor Diana Greenfield
Professor Diana Greenfield is Consultant Nurse in Late Effects at Sheffield Teaching Hospitals NHS Foundation Trust, Honorary Professor in Cancer Survivorship in the Department of Oncology and Metabolism, University of Sheffield and Senior Nurse Research Leader on the National Institute for Health Research 70@70 programme.
Clinically, Diana leads a multi-disciplinary team providing late effects care for younger people after cancer and after bone marrow transplant. Diana strives to develop and improve aftercare services for all cancer patients both within her own hospital trust and also through regional and national initiatives.
Diana’s team was awarded the prestigious Health Service Journal and Nursing Times Patient Safety and Care Award in the Cancer Care category in 2014. Diana was awarded “Inspirational Leader” in the NHS Regional Leadership Awards for Yorkshire and Humber in 2014, finalist in the national NHS Regional Leadership Awards in 2015 and a finalist in the Macmillan Excellence awards in 2016.
Dr Ellissa Baskind
Dr Baskind is a Senior Registrar at Leeds Centre for Reproductive Medicine (LCRM) within Leeds Teaching Hospitals NHS Trust. She is currently a Sub-Speciality Trainee in Reproductive Medicine, and has worked in this field for over ten years. Dr Baskind received a Commendation from The University of Leeds for her MD in Reproductive Medicine, which specifically researched ovarian folliculogenesis. She has a number of publications in this field and more recently relating to PCOS. Dr Baskind has an interest in fertility preservation in women with cancer, and helping childhood survivors of cancer with their fertility, and participates in the multidisciplinary Fertility Oncology clinic at LCRM. Her other fertility interests include gamete donation and Pre-implantation Genetic Diagnosis.
Professor Galina Velikova
Professor Velikova is a Consultant in Medical Oncology and a Professor at the University of Leeds. Her clinical work focuses on systemic treatment of breast cancer patients with early and advanced disease. Professor Velikova leads a research group to study the implementation of routine measurement of patient-reported outcomes and quality of life in oncology practice, originally funded by cancer Research UK. More recently, with programme funding from the National Institute for Health Research, she researches the use of online patient self-reporting of adverse events during and after treatment with chemotherapy, radiotherapy and surgery. Prof Velikova leads the quality of life sub-studies of national and international research trials in breast cancer, including TACT2 and SUPREMO. She supports the local implementation of holistic needs assessment of cancer patients, based on self-reporting of distress (NICE supportive & palliative care guidelines). Nationally she contributes to the National Cancer Survivorship Initiative, led by Macmillan Cancer Support. Since 2013 she leads the working group on Advanced and Active Disease.
Professor Velikova is the current president of the International Society for Quality of Life Research (ISOQOL). In the past she has chaired the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group and the British Psychosocial Oncology Society (BPOS). She has been a former member of the UK National Cancer Research Institute Psychosocial Oncology Clinical Studies Development Group.
Professor Georgina Jones
Georgina Jones is a Professor of Health Psychology. Her research uses both quantitative and qualitative research methods and focuses on quality of life measurement, psychometrics, decision-making and questionnaire development, with a special focus on women's health.
Before joining Leeds Beckett University in 2016, she was a Reader in Social Science at the University of Sheffield in the School of Health and Related Research (ScHARR). She undertook her D.Phil at the University of Oxford (Green College) working in the Nuffield Department of Obstetrics and Gynaecology and the Health Services Research Section.
Professor Jones is currently leading the Cancer, Fertility and Me study. Funded by Yorkshire Cancer Research, this is a three year, prospective, mixed-method study to develop a patient decision aid (PtDA) for teenage and adult women of child bearing age, diagnosed with any cancer who need to consider fertility preservation choices before starting cancer treatment.
She is also leading a large international study concerned with developing a new questionnaire to measure the burden of treatment for patients living with a primary immunodeficiency. She is currently co-applicant on several other high profile studies funded by the National Institute for Health Research, the Health Technology Assessment and the Medical Research Council. She is a past Associate Editor of Health & Quality of Life Outcomes and an Associate member of the Heath Service Research Unit, at the University of Oxford.
She has led and supported the development and validation of new instruments; particularly within the field of women’s reproductive health; the Endometriosis Health Profile-30 (Jones et al, 2001, 2004, 2004, 2006), an electronic pelvic floor questionnaire (Radley & Jones 2004; Radley et al, 2006; Jones et al, 2008, 2009), the Polycystic Ovary Syndrome Questionnaire (Jones et al, 2004) and the Mothers & Partners Postnatal Health Instruments (Jones et al, 2011). Her EHP-30 is now officially translated into over 30 languages and is used internationally and in clinical trials by major pharmaceuticals.
Grete Brauten Smith
Grete is a Clinical Nurse Specialist for younger women at the charity Breast Cancer Care. This is a unique role helping her to focus and lead on the support and information needs of younger women with breast cancer and promote awareness of these needs across the UK. Grete is also involved in the development and delivery of the Younger Women Together events. In conjunction with Breast Cancer Care’s Younger Women Champions (a group of breast care nurses with a special interest in younger women with breast cancer), they have recently developed the Fertility toolkit for healthcare professionals. This was produced to aid communication between breast cancer teams and fertility units to ensure younger women with breast cancer have the opportunity to discuss possible fertility preservation options before starting cancer treatment. Grete feels that although fertility preservation will not always be appropriate or successful, younger women deserve to have this discussion with fertility specialists.
Professor Hilary L Bekker
Professor Hilary L Bekker, is a Chair in Medical Decision Making at the School of Medicine, University of Leeds. Professor Bekker is a chartered psychologist who studies how people make decisions, what boosts or hinders people’s decisions about healthcare options, and why using patient decision aids helps patients make reasoned treatment choices. Professor Bekker has designed over 40 patient decision aids to be used by patients either on their own, or in consultation with health professionals. Professor Bekker is a contributor to the International Patient Decision Aid Standards (IPDAS) collaboration, an International Trustee for the Society of Medical Decision Making (SMDM), and previous board member of the Division of Health Psychology (DHP-BPS). Professor Bekker leads the psychological and social science approaches to health year 1 core course on the undergraduate medical degree (MBChB), and is year 1 lead for the MBChB.
To date, Jacqui has joined the Sheffield and Humberside Ethics Committee, sits on trial steering committees, is a lay member of the Clinical Trials Executive and Experimental Cancer Medicines Committee and supports the work of local researchers in particular. She has many other commitments in the field of patient advocacy including palliative care research, and has been able to use her professional experience of website design and work in IT to good effect.
- Lay member of Breast Cancer Campaign's Tissue Bank Access Committee.
- Lay member of the NUHR Doctoral Funding Review Panel.
- Lay member of the Human Tissue and Biological Samples Guidance Committee.
- Member of the Clinical Trial Executive Committee Weston Park Hospital Sheffield.
- Member of the ECMC Committee Weston Park Hospital Sheffield.
- Member of TSG on SPECIAL, HYDRANT, Bridging the Age Gap in Breast Cancer: Improving outcomes for older women, INTEGRATE-EU - Palliative Care in the EU.
- Member of Yorkshire and Humberside Palliative Care Advisory Group.
- Member of the North Trent Cancer CRP.
Jane Hughes is a Research Associate in the department of School of Social Sciences at Leeds Beckett University. She is currently working on a prospective, mixed-methods study (Cancer, Fertility and Me) developing and evaluating a decision aid for women who have been diagnosed with cancer and are considering fertility preservation.
Jane has a background in Economics and previously worked at Sheffield University in the Health Economics and Decision Science Unit on several NIHR-funded health research studies. Her research uses both quantitative and qualitative research methods and focuses on decision-making and questionnaire development, with a special focus on cancer. Previously, she was a Data Manager at the Sheffield University Clinical Trials Research Unit, working over a number of cancer clinical trials.
Jane has a Masters in Public Health from Sheffield University.
Mr Jonathan Skull
Jonathan Skull is a Consultant in Reproductive Medicine and Surgery and the Clinical Head of Jessop Fertility. After graduating from Bristol University in 1988, he trained in Obstetrics and Gynaecology in Bristol, Sheffield and London. He was senior IVF co-ordinator at the Hammersmith Hospital working with Professor Lord Robert Winston. Upon returning to Sheffield in 1997, he then worked as a Clinical Lecturer at the University of Sheffield working with Professor Ian Cooke and Professor Bill Ledger. He plays a key role in helping develop regional NHS fertility services. He is an expert adviser for the Specialised Commissioning Groups in Yorkshire and the Humber and the East Midlands.
Mr Skull has particular interests in laparoscopic and hysteroscopic surgery and tubal microsurgery, including reversal of sterilisation. He also has special interests in endometriosis, Polycystic Ovarian Syndrome (PCOS) and male factor infertility including surgical sperm recovery.
Professor Snowden graduated from the University of Leeds in 1989 and trained in Internal Medicine and Haematology in the UK, New Zealand and Australia. In 2002, he was appointed as Consultant Haematologist & Director of Blood and Marrow Transplantation (BMT) in the Sheffield Teaching Hospitals NHS Foundation Trust, and subsequently worked as Lead Clinician in Haemato-oncology for the Trust (2002-07) and Cancer Network (2007-10). In 2012, Sheffield became the first Anthony Nolan collection centre outside London, thereby forming an important component of the Aligned UK Bone Marrow donor registry.
Professor Snowden has published around 200 clinical and scientific articles, reviews and book chapters, and led on key national and international clinical guidelines (h-index 32). He was recently elected as Chair to the EBMT Autoimmune Disease Working Party (ADWP). He is also the current Chair and former Medical Director of JACIE, which oversees the accreditation of BMT programmes throughout Europe. He is also the current Secretary of the British Society for BMT (BSBMT) and Lead Clinician for the NICE Guidance in Haematological Cancers. In June 2016 John was appointed as Chair of the NHS England National Specialised Commissioning Clinical Reference Group (CRG) for BMT, overseeing current and future service provision of BMT across NHS England.
- Chair of the EBMT Autoimmune Disease Working Party
- Chair of the JACIE organisation, which oversees the accreditation of BMT programmes throughout Europe
- Lead Clinician for the updated NICE Improving Outcomes Guidance (IOG) in Haematological Cancers () and a guideline development group member of the NICE Guidelines for Multiple Myeloma
- NCRI Clinical Studies Group in Haematological Oncology, Chair of Supportive Care, Transfusion and Late Effects Working Party
- Chair of the NHS England National Specialised Commissioning Clinical Reference Group (CRG) for BMT, overseeing current and future service provision of BMT across NHS England
Professor Karen Collins
Professor Karen Collins is Professor of Health Services Research. She has worked within the Centre for Health and Social Care Research at Sheffield Hallam University since 2007. She spent the previous 15 years working at the University of Sheffield both within the School of Health and Related Research (ScHARR) and the Academic Unit of Supportive Care based in the Medical School. She currently leads the Health Care and Service Delivery Research theme within the Centre.
Research interests/current work
Health Services Research, Psycho-Oncology Patient and Public Involvement in Health Research, Psycho-Oncology, Patient Satisfaction and Patient Experience Research, Qualitative Research, Mixed Methods.
Dr Neda Mahmoodi
Dr Mahmoodi is a Chartered Psychologist, with a PhD in Psychology (2014) from Keele University on "the experience of Shared Decision Making (SDM) for women with breast cancer". She has also completed a PGCE Psychology (2010), a MRes Clinical Psychology (2008) from Birmingham University, and a BSc (Hons) Psychology (2007) from Sheffield University.
Since her studies, Neda has worked as a research fellow both at Manchester and Leeds of University School of Medicine, and across various NHS secondary care trusts in the North West, Yorkshire, and Staffordshire. Currently Neda is working at Leeds Beckett University as a senior lecturer in Psychology, and has collaborated with Professor Georgina Jones on working on the Cancer Fertility and Me project funded by Yorkshire Cancer.
Neda has a background in critical health psychology, with health research knowledge to investigate medical decision-making, and to evaluate service health interventions which help people think differently about their healthcare decisions and improve their quality of life. Her approach to research uses qualitative methods and combines a theoretical reworking of the way language, the ‘lived’ experience, and psychology are understood, with detailed technical analyses of empirical data using conversation and thematic analysis. Her research interests include shared decision-making, doctor-patient communication, quality of life measurements, and complex health intervention for behaviour change, with a special focus on oncology and women's health.
Dr Richard Jacques
Richard graduated with a BSc(Hons) in Mathematics from the University of Hull and an MSc in Statistics from the University of Sheffield. For his PhD he worked on an EPSRC CASE funded project with AstraZeneca investigating methods of classification for high content screening data. Richard is interested in the application of statistics in medical research and multivariate data analysis. He am a member of the Royal Statistical Society.
Dr Sheila Lane
Dr Sheila Lane is a Consultant Paediatric Oncologist at the Children’s Hospital Oxford. She specialises in the management of long term complications of cancer treatment and has set up a comprehensive long term children’s cancer follow up programme in Oxford. Dr Lane is also the Clinical Director for the Oxford Fertility Tissue Cryopreservation Programme. This is a unique service which is a joint venture between the University of Oxford and the Oxford University Hospitals NHS Foundation Trust. The Fertility Tissue programme offers a clinical fertility preservation service to children and young adults across England and Wales as well as spearheading a large research portfolio with national; and international collaboration.
Dr Lane is a member of the British Fertility Society Oncofertility Working Group and in the last year has been involved with the production of National Guidelines and Standards for fertility preservation for patients pre cancer treatment.
- Honorary Senior Clinical Lecturer, University of Oxford
- MB, BS, PhD, MRCPCH, GMC number: 3442201
- Royal College of Paediatrics and Child Health
- Children's Cancer and Leukaemia Group (CCLG)
- International Society of Paediatric Oncology
- British Fertility Society (BFS)
- The Society for Reproduction and Fertility (SRF)
Tonia lives and works in London as a Digital Project Manager. In Sept 2007, Tonia was diagnosed with cervical cancer and underwent a radical trachelectomy, followed by a course of radiotherapy and chemotherapy, this led to her being unable to have children of her own. Tonia has been cancer free for over nine years and she and her husband have gone onto adopt a son.
Dr Frances Darby
Frances is a Research Assistant and Project Officer in the School of Social Sciences at Leeds Beckett University specialising in qualitative research in health and social sciences. She is a Registered General Nurse and qualified secondary school teacher.
Prior to her involvement with the Cancer, Fertility and Me study she worked on a diversity of studies including the NHS Working in Partnership’s Self Care initiative, streetreach work in Leeds, clinical skills training and dementia care training in nursing homes, communication skills in spiritual care, higher education and the Metropolitan Police, Phunky foods (nutrition in primary schools), engaging with ‘hard to reach’ families, community parenting initiatives and family support strategies.
She has a BA (Hons) and a MA in Sociology and a PhD in Health Studies and Sociology all from the University of York.
Dr Rachael Moss
Rachael has a BSc in Psychology from Bangor University. Whilst there she became particularly interested in applied health psychology. She went on to complete an MSc in Psychological Approaches to Health at the University of Leeds where she focused on the relationship between food, eating and well-being.
She recently completed her PhD in Health Psychology at the University of Leeds where she examined the impact of stress on the eating behaviours of primary school children and young adults.
Rachael is particularly interested in the study of patient safety, nutrition and contemporary issues in healthcare. She is a Research Assistant in the School of Social Sciences at Leeds Beckett University working on the Cancer, Fertility and Me study.
Kathy has a background in decision-making, women's health and the psychosocial impact of life-limiting and life-threatening illness. She has a BSc in Psychology from Sheffield Hallam University and an MSc in Psychological Research Methods from the University of Sheffield. She has worked as an interdisciplinary PhD student in Health Psychology/Medicine at the Sheffield Institute for Translational Neuroscience.
She is a member of the British Psychological Society as well as the International Psycho-Oncology Society (IPOS). Kathy has published in the areas of health psychology, psych-oncology, psychological therapies and has a specialist interest in systematic reviews.
Kathy has worked as a Research Assistant in the School of Social Sciences at Leeds Beckett University, working exclusively on the Cancer, Fertility and Me study whilst completing her PhD. In 2018 she presented the study’s findings at the IPOS World Congress of Psycho-Oncology in Hong Kong.
In 2019, she joins the University of Huddersfield as a lecturer in Health Psychology."
Dr Dan Stark
Dr Dan Stark trained as a medical oncologist in Cambridge, London and Leeds. He has been the medical lead for the cancer service for young people in the Yorkshire region since about 2006. He has played his part in building a specialist clinical service for young people in Leeds since the late 1990s. He has been at the heart of several European initiatives in TYA cancer since 2010.
Dan oversees a local research programme mainly about patient experience, using quality of life data in clinical practice, and novel models of follow-up after cancer.
Dan supports the evolution of NHS policy for TYA cancer care. He treats young people with testis cancer or sarcomas, and also supports adult clinicians looking after TYA if they find that helpful.
Dr Mariano Mascarenhas