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Cancer

Quality Criteria

Quality Criteria


Update Policy

Every effort has been made to ensure that this resource provides up to date and accurate information at the date of publication (September, 2019). The CFM team will continually review emerging evidence to ensure that accurate information is presented and will update the resource annually, unless any new evidence emerges that warrants earlier updating. The next planned update will take place in September 2020.

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Quality criteria

The development and evaluation of the Cancer, Fertility and Me decision aid, funded by Yorkshire Cancer Research has been completed and alternative forms of the decision aid are currently being developed.

The underpinning and evaluative literature for the study is here.

Peer-reviewed journal articles
  1. Jones, G., Hughes, J., Mahmoodi, N., Smith, E., Skull, J., & Ledger, W. (2017). What factors hinder the decision-making process for women with cancer and contemplating fertility preservation treatment? Human Reproduction Update23(4), 433-457.
  2. Jones, G. L., Hughes, J., Mahmoodi, N., Greenfield, D., Brauten-Smith, G., Skull, J., Gath., J., Yeomanson, D., Baskind, E., Snowden, J. A., Jacques, R. M., Velikova, G., Collins, K., Stark, D., Phillips, R., Lane, S., & Bekker, H. L. (2017). Observational study of the development and evaluation of a fertility preservation patient decision aid for teenage and adult women diagnosed with cancer: the Cancer, Fertility and Me research protocol. BMJ open, 7(3), e013219.
  3. Mahmoodi, N., Bekker, H. L., King, N. V., Hughes, J., & Jones, G. L. (2018). Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan? BMC Medical Informatics and Decision Making, 18(1), 104.
  4. McDougall S, Vogt KS, Wilkinson A, Skull J, Jones GL. Outcomes of delivering a fertility preservation service for women with cancer over a 12-year period at a UK assisted conception unit. J Obstet Gynaecol. 2019 Aug 8:1-8. doi: 10.1080/01443615.2019.1621823. [Epub ahead of print] PubMed PMID: 31392913.

  5. Vogt, K. S., Hughes, J., Wilkinson, A., Mahmoodi, N., Skull, J., Wood, H., McDougall, S., Slade, P., Greenfield, D. M., Pacey, A., Ledger, W., & Jones, G. L. (2018). Preserving fertility in women with cancer (PreFer): Decision‐making and patient‐reported outcomes in women offered egg and embryo freezing prior to cancer treatment. Psycho‐Oncology, 27(12), 2725-2732.
Oral Conference Presentations 
  • Jones, G. L., Vogt, K., Darby, F., Mahmoodi, N., Hughes, J., Greenfield, D., Skull, J., Lane, S., Brauten-Smith, G., Yeomanson, D., Baskind, N. E., Velikova, G., Snowden, J., Gath, J., Campbell, T., Phillips, B., & Bekker, H. L. (2018, November). Experience of developing and evaluating a fertility preservation patient decision aid for teenage and adult women with cancer for use in oncology settings, UK. The 20th World Congress of Psycho-Oncology, Hong Kong, China.
  • Abstract Published
    • Jones, G. L., Vogt, K., Darby, F., Mahmoodi, N., Hughes, J., Greenfield, D., Skull, J., Lane, S., Brauten-Smith, G., Yeomanson, D., Baskind, N. E., Velikova, G., Snowden, J., Gath, J., Campbell, T., Phillips, B., & Bekker, H. L. (2018, October). Experience of developing and evaluating a fertility preservation patient decision aid for teenage and adult women with cancer for use in oncology settings, UK (The Cancer, Fertility and Me study). In Psycho-Oncology (Vol. 27, No. S3, pp. 45-45). John Wiley & Sons Inc.
  • Vogt, K., & Jones, G. L. (2018, September). Quality of life and decision making in women offered fertility preservation prior to cancer treatment. The British Psychological Society, Division of Health Psychology Annual Conference, Newcastle, UK.
  • Jones, G. L. (2017, January). Patient decision aids for fertility preservation. Fertility, Edinburgh, UK.
  • Mahmoodi, N., Bekker, H., King, N., Hughes, J., & Jones, G. (On behalf of the Cancer, Fertility and Me study group). (2017, July). Decision aids’ efficacy to support women’s fertility preservation choices before cancer treatment: An environmental scan. International Shared Decision Making Conference, Lyon, France.
  • Abstract Published
    • Mahmoodi, N., Bekker, H., King, N., Hughes, J., & Jones, G. (2016, July). Decision aids’ efficacy to support women’s fertility preservation choices before cancer treatment: An environmental scan
  • Mahmoodi, N., Bekker, H., King, N., Hughes, J., & Jones, G. (On behalf of the Cancer, Fertility and Me study group). (2016, July). Decision aids’ efficacy to support women’s fertility preservation choices before cancer treatment: An environmental scan. The 16th Biennial Society for Medical Decision Making European Conference, London, U
  • Abstract Published
    • Mahmoodi, N., Bekker, H., King, N., Hughes, J., & Jones, G. (2016, July). Decision aids’ efficacy to support women’s fertility preservation choices before cancer treatment: An environmental scan
  • Jones, G. L., Hughes, J., Greenfield, D., Pacey, A., Slade, P., Coleman, R., Skull, J., & Ledger, W. (2016, July). What factors influence the fertility preservation treatment decision-making process in women with cancer? The qualitative findings of the PreFer study. The 16th Biennial Society for Medical Decision Making European Conference, London, UK.
  • Abstract Published
    • Jones, G. L., Hughes, J., Greenfield, D., Lacey, A., Slade, P., Skull, J., & Ledger, W. (2016, July). What factors influence the fertility preservation treatment decision-making process in women with cancer? the qualitative findings of the PreFer study. European Shared Medical Decision Making conferences. In European Shared Medical Decision Making conferences, Abstract.
  • Jones, G. L., Hughes, J., Poku, E., Mattick, E., Mahmoodi, N., Skull, J., & Ledger, W. (2016, July). What factors influence the decision-making process for women with cancer contemplating fertility preservation? A systematic review. Royal College of Obstetricians and Gynaecologists World Congress, Birmingham, UK.  
  • Abstract Published
    • Jones, G., Hughes, J., Mattick, E., Poku, E., Mahmoodi, N., Skull, J., & Ledger, W. (2016). What factors influence the decision-making process for women with cancer contemplating fertility preservation? A systematic review: FC14. 006. Bjog: An International Journal of Obstetrics and Gynaecology123, 70-71.
Poster Presentations
  • Jones, G. L., Hughes, J., Mahmoodi, N., Greenfield, D., Brauten-Smith, G., Skull, J., Gath, J., Yeomanson, D., Lane, S., Phillips, B., Stark, D., Jacques, R., Baskind, E., Velikova, G., Collins, K., & Bekker, H. (On behalf of the Cancer, Fertility and Me study group). The development of a fertility preservation decision aid to support teenage and adult women with cancer. (2016, July). Teenagers and Young Adults with Cancer Annual Conference, Leicester, UK.

A full list of all the resources can be seen on the home page under 'Resources'.

Publications from the pilot testing and evaluation phases of the study are pending.

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