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School of Health

How can community organisations appropriately use digital technology to deliver services to adults with learning disabilities and/or autistic adults?

Kris Southby, Anne-Marie Bagnall, Jo Trigwell, and Danielle Varley from the Centre for Health Promotion Research and Sally SJ Brown from the University of Leeds have just finished working with Nicky Lines from Pyramid and Amy Hearn from 100% Digital Leeds on a project to find out how digital technology can be appropriately used by voluntary and community organisations (VCSOs) that deliver services to adults with learning disabilities and/or autistic adults.

Published on 04 Jun 2025
A laptop on a desk with a phone and a pair of glasses on it, with a plant next it

The project, which was funded by the National Institute for Health and Social Care Research (NIHR204244), produced six evidence-based top tips. These are summarised in the animation below. The accompanying research briefing provides more details.  

How can community organisations appropriately use digital technology to deliver services to adults with learning disabilities and/or autistic adults?

Digital technology is part of everyday life.
From watching your favourite TV show to booking appointments, it's one of the main ways we connect with the world.
However, accessing technology isn't the same for all.
Voluntary sector organisations provide lots of support to people with learning disabilities and autistic people who have diverse needs.
How can voluntary sector organisations use technology to support everyone best?
Researchers at Leeds Beckett University, 100% Digital Leads and Pyramid wanted to find out.
They ran workshops with autistic people, those with learning disabilities, then voluntary sector organisations.
They also reviewed existing guidelines and research evidence.
Autistic people, people with learning disabilities and voluntary organisations informed the research process throughout.
Here are 6 evidence based top tips for organisations using digital tech as part of their services.
One, don't assume digital is the answer for everyone.
There's evidence it's great for social skills, health and work, but only if it's used correctly and in the right setting.
2 Give people a choice.
Digital shouldn't be the default option, it should be what works well for the people and organisations involved.
3 Personalise the experience.
Make sure technology fits the person and also the organisation.
Offer alternatives if they're not comfortable.
Don't assume what people need.
4 Consider hybrid delivery.
Hybrid meant different things to different people in the research workshops.
Virtual and in person options can be blended or use technology in face to face settings in valuable ways.
5 Support goes beyond just tech training.
Teach safe usage and help people get the most out of technology.
Parents and carers might also need help getting used to technology so that they can then help the people they support.
6 Involve users in the design process.
Work with autistic people and those with learning disabilities to shape tech services.
Consider language use, visuals and technology delivery.
Support them in engaging in the Co design process.
Listen to their ideas so the technology delivers what they want and need.
Everyone has the right to choose how they engage with the digital world.
How could your organisation help everyone engage with technology on their terms?
For more about the research, visit the link on screen. - eprints.leedsbeckett.ac.uk/id/eprint/12080

The team held a webinar on 21 May 2025 to officially launch the project results. Forty-four people from local and national government, NHS, the voluntary sector and universities attended. The slides used in the webinar and a recording of the webinar are available to download.  

Background:

Digital technology is seen as a way to improve quality and reduce the cost of social care services. At the same time VCSOs are also getting more involved in delivering social care services to adults with learning disabilities and/or autistic adults. 

VCSOs started using digital technology more during the Covid-19 pandemic but very few organisations or service users were properly prepared for it. Now they are trying to figure out how to combine technology and in-person activities in the most appropriate way. At the moment there is not enough information to help VCSOs use technology in the best way to deliver services. This research aimed to help VCSOs know how to do this. 

The research looked at adults with learning disabilities and autistic adults together because this is how they are often grouped together by services. 

What we did:

The research used a ‘participatory realist review’ methodology. This means it did not collect new data through, for example, interviews or surveys. Instead, the team tried to collect and understand all of the already published information about the topic. People from VCSOs and people with learning disabilities and/or autistic adults from the Autism and Learning Disability Digital Inclusion Network (ALaDDIN) were involved throughout.  

Nicky from Pyramid, who previously coordinated ALaDDIN, said: 

“I worked really closely with Kris and the team throughout this piece of research...It was a really lovely piece of research. We have this video now and hopefully that will be helpful for lots of different organisations in the future”  

A protocol paper describing the method in detail has been published in Systematic Reviews and is available for free.  

What next?

The research identified six top tips to help VCSOs use digital technology more appropriately with adults with learning disabilities and/or autistic adults. However, it also produced lots more questions. 

One of the initial hopes for the research was to be able to give clear guidance about which technology might be useful for VCSOs working with specific groups of people and to deliver specific services. However, this was not possible due to the great range of ways that digital technology is used by VCSOs, the diversity among the learning disability and autistic communities, and the lack of research that has been done on the specific topic.  

The team from the Centre for Health Promotion Research plans to continue collaborating with partners from other universities, local and national government, the voluntary sector, and people with learning disabilities and autistic people to do more research. 

  • In Spring/Summer, the team are holding a series of discussions about learning disabilities, VCSOs, and digital inequalities. The next is an online workshop at 12:30 on 18 June 2025 to discuss research priorities and co-create a research agenda.  

You can register to attend on Eventbrite. 

  • There will also be an in-person event in Leeds for adults with learning disabilities and autistic people to share their experiences and ideas. This will be on 18 July 2025. (Registration has not yet opened).  

For more information about the completed project or about future plans, please contact Kris Southby.  

Credits and Disclaimers: 

The animation was created by NIFTY FOX CREATIVE

Logo and disclaimer for the National Institute for Health and Care Research (NIHR). Text states that the research was funded by NIHR Research for Social Care (NIHR204244), with a disclaimer that the views expressed are those of the author(s) and not necessarily those of NIHR or the Department of Health and Social Care.

Dr Kris Southby

Senior Research Fellow / School of Health

Kris is a Senior Research Fellow and Assistant Director in the Centre for Health Promotion Research. Interested in community-centred approaches to health, the health and wellbeing of adults with learning disabilities, and participatory research methods.

Professor Anne-Marie Bagnall

Professor / School of Health

Anne-Marie Bagnall is Professor of Health and Wellbeing Evidence and Director of the Centre for Health Promotion Research at Leeds Beckett University. Her research aims to improve people's health and wellbeing and reduce health inequalities.

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