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Sport and healthy communities

Empowering female cancer patients

Creating vital decsion aids with international influence

Professor Georgina Jones

Professor

Loss of fertility is one of the most distressing potential late effects of cancer treatment for women. It can present difficult and complex decisions to be made at short notice before treatment begins.

This was the inspiration for a ﬁrst-of-its-kind project from researchers from the School of Humanities and Social Sciences at Leeds Beckett University. Patients surviving cancer will live with the consequences of the choices made about their fertility for the rest of their lives, but there was previously limited information available to enable a substantial number of women to make an informed decision.

Professor Georgina Jones and her team created Cancer, Fertility & Me, a decision aid built upon the data from a three-year longitudinal study with local female cancer patients contemplating fertility preservation.

This showed that patients wanted to receive better information sooner to feel fully equipped to have more focused consultations with fertility experts and be able to ask the right questions at the right time. Living beyond cancer and addressing the late effects and quality of life of cancer patients is a national priority for the NHS and cancer organisations. The booklet is now available to all female cancer patients, free of charge; and has been translated into French, German, Italian, Spanish and Dutch.

I so wish I had been offered these options when I was first diagnosed. The Cancer, Fertility & Me booklet will give women the power to help make the best decisions for themselves in conjunction with their medical teams. I hope it is adopted by all hospitals.