Cat Brooke

As a non-traditional research office, we have been heavily involved in dissemination activity and, increasingly, rather than just academic staff who are already interested in the outcome of research projects, this means attempting to engage, involve and inspire the public. Public engagement involves a range of approaches that universities or research institutes can take to involve the public with their work. An important part of any public engagement work is to think about the people you want to engage with – but who are the public and how can you ensure that you identify and engage with them effectively? Whoever you are interested in disseminating your research findings to we will consider ways to ensure your planned activity is appropriate and relevant to the target audience so they can effectively contribute to your research. The workshop will help you to identify your audience and, using new technology to track, monitor and evaluate events, to engage with them to further disseminate and promote research. This interactive workshop will involve working in groups using a range of craft materials to create a mood board to demonstrate how you would identify and engage with your audience to maximise participation for your event.

Background The National Institute of Health and Care Excellence in the United Kingdom have recommended the development of a patient-reported outcome measure (PROM) specific to surgery for pelvic organ prolapse (POP), stress urinary incontinence (SUI), and complications of pelvic mesh surgery (MC). Aims To identify all aspects of quality of life (QoL) that may be impacted by surgery for POP, SUI and MC, to inform the development of a new PROM. Method Thirty-one patients who had undergone surgery for POP, SUI and MC (ranging from <6 months to >5 years ago) were purposively recruited from various National Health Service (NHS) Trusts, as well as community support groups for the conditions. Semi-structured interviews were undertaken over the phone or via video-conferencing software, and a framework approach was employed to analyse the data. A Patient and Public Involvement group, comprising seven women who had undergone surgery for POP, SUI and/or MC, were consulted on various aspects of the study. Findings We identified nine themes for potential inclusion in the PROM. The themes are short-term impacts of surgery; long-term impacts on pre-surgery symptoms; pain and/or discomfort; impact on daily activities; social and leisure activities; emotional wellbeing; sexual activity; personal relationships; and work/education. While some participants showed improvements in these areas following surgery, it was also evident that for some, issues persisted, worsened, or developed post-surgery. Those in the sample who had previous surgery involving mesh reported worse QoL outcomes overall. Conclusion The impact of surgery for POP, SUI and MC on QoL is multidimensional and complex. It is recommended that a future PROM encompasses the potential for improvement of symptoms, the failure of surgery to improve symptoms, the development of new symptoms after surgery, and the consequential positive and negative impacts of surgery on activity, roles, psychological well-being and ultimately QoL, in both the short and long term.