Contact us
Please contact us by email if you want to find out more about the Centre for Outcome Measure Development and Psychometrics.
Leeds Beckett University - City Campus,
Woodhouse Lane,
LS1 3HE
Centre for Outcome Measure Development and Psychometrics
CODA focuses upon the development of outcome measures, such as patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs).
What we do
We sit within Psychology in the School of Humanities and Social Sciences and focus upon the development of outcome measures, such as Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs). We're looking to address the gaps in outcome measures research. We work across health and care, building on Leeds Beckett University’s strong reputation in this field. We work with a wide range of health and care professionals, researchers, and other key stakeholders. Our research is informed by and undertaken in partnership with people with lived experience. The centre is led by Director Professor Georgina Jones and Deputy Director Dr Tim Pickles.
PROMs play a crucial role across the NHS, the third sector and in the commercial field. For example, the U.S. Food and Drug Administration (FDA) now require PROM evidence as an essential part of securing labelling claims.
We focus on outcome measure development and sound methodology in social science and psychometrics. Psychometrics is a branch of psychology that focuses upon measuring how people think, feel and behave. Within the field of health research, it typically involves the development and application of questionnaires that have been designed to measure the impact of a health condition or its treatment upon areas of a person’s life.
Our specialisms
Our skills and expertise are in:
- Women's health
- Rheumatology (medicine which focuses on diagnosing and treating diseases that affects the joints, muscles, bones and immune system)
- Rare diseases
We have also supported the development of PROMs across a whole range of medical conditions and interventions such as:
- Dermatology
- Anaesthesia
- Cancer
- Vascular disease
- Immunodeficiency
- Burns
- Urology
Funding for CODA
CODA receives no core funding.
The work we have undertaken to date has been funded by:
- NIHR Health Technology Assessment Programme
- Pharmaceutical companies such as Takeda and Galderma
- Charities such as the Sir Halley Stewart Trust
- Doctoral fellowships
- Match-funding for example from Harrogate and District NHS Trust and Leeds Beckett University
The Appraise study is funded by the NIHR Health Technology Assessment Programme.
Current PhDs are funded by Leeds Beckett University, in collaboration with the NHS and commercial partners.Partners
We've partnered with:
Our mission is to lead the creation of excellent outcome measures for use in practice and research through the application of rigorous psychometric methodology, ensuring that we put the person at the heart of person-centred care. We are attached to the Sport and Healthy Communities core research theme across Leeds Beckett University."
Researchers
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![Professor Georgina Jones staff profile image]()
Professor Georgina Jones
Professor / School of Humanities and Social Sciences -
![Tim Pickles staff profile image]()
Dr Tim Pickles
Senior Research Fellow / School of Humanities and Social Sciences -
![Dr Mollie Price staff profile image]()
Dr Mollie Price
Research Fellow / School of Humanities and Social Sciences -
![Postgraduate research student, Francesca Taylor]()
Dr Francesca Taylor-Phillips
Research Fellow / School of Humanities and Social Sciences -
![Leeds Beckett Logo]()
Georgie Forshall
Research Assistant / School of Humanities and Social Sciences
Researchers
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![Professor Georgina Jones staff profile image]()
Professor Georgina Jones
Professor / School of Humanities and Social Sciences -
![Tim Pickles staff profile image]()
Dr Tim Pickles
Senior Research Fellow / School of Humanities and Social Sciences -
![Dr Mollie Price staff profile image]()
Dr Mollie Price
Research Fellow / School of Humanities and Social Sciences -
![Postgraduate research student, Francesca Taylor]()
Dr Francesca Taylor-Phillips
Research Fellow / School of Humanities and Social Sciences -
![Leeds Beckett Logo]()
Georgie Forshall
Research Assistant / School of Humanities and Social Sciences
Research students
Find out more about current internally and externally supervised PhD students as well as past students who have been supervised and supported on PROM development.
- Danielle Musson - Development and evaluation of a patient-reported outcome measure (PROM) to assess health-related quality of life (HRQoL) in patients with primary and secondary antibody deficiency - Professor Georgina Jones (Director of Studies), Dr Tim Pickles and Professor Trish Holch
- Sarah Evans - Developing and evaluating an electronic questionnaire to capture acne patient-reported outcomes in routine clinical practice (ePAQ-Acne) - Professor Georgina Jones (Director of Studies), Professor Jim Morgan, and Professor Alison Layton (Harrogate and District NHS Foundation Trust)
- Georgie Forshall - Pelvic organ prolapse in the reproductive years: Younger women's experiences of health, healthcare and help-seeking - Professor Georgina Jones (Director of Studies), Dr Rhys Turner-Moore, and Professor Stephen Radley (Sheffield Teaching Hospitals NHS Foundation Trust)
- Rebecca Mottram (University of Leeds, NIHR Doctoral Fellow) - Meeting the needs of young cancer patients and their caregivers after fertility tissue preservation: A mixed methods study to inform a reproductive clinical care support model - Professor Adam Glaser, Professor Richard Feltbower, Dr Sarah Gelcich, Professor Georgina Jones
- Christian Lambert (Cardiff University) - Evaluation of a Prehabilitation pathway and understanding the effects of extended knee and hip joint replacement waiting lists - Professor Kate Button, Dr Mohammad Al-Amri, Dr Tim Pickles
- Pongnugoon Kongjaidee (Cardiff University) - Patient-reported outcome measures and patient-reported experience measures in eye care - Dr Jennifer Acton, Professor Barbara Ryan, Dr Tim Pickles
A number of past students have been supervised and supported on PROM development and validation research including:
- Gestational trophoblastic disease (Dr Jane Ireson - Leeds Beckett University)
- Wolf Hirschhorn disease (Dr Kathy Vogt - University of Sheffield)
- Assisted augmentative communication devices (Dr Kath Broomfield - Manchester Metropolitan University)
- Idiopathic pulmonary fibrosis (Professor Anne-Marie Russell - Imperial College, London)
Presentations at conferences
British Society of Rheumatology 2026 (Glasgow)
- Tim Pickles, Danielle Musson, Georgina Jones, poster P149 - A systematic review of patient reported outcome measures for lupus-specific health-related quality-of-life following COSMIN guidelines. Rheumatology. 2026;65(Supplement_2)
- Tim Pickles, poster, E089 - Thoughts of people living with rheumatoid arthritis on a weekly rheumatoid arthritis disease activity monitoring tool. Rheumatology. 2026;65(Supplement_2)
UK Continence Society Annual Conference 2026 (Bradford)
- Francesca Taylor-Phillips, Georgie Forshall, Mollie Price, Cat Brooke, Georgina Jones, oral, A qualitative study to inform the development of a new quality of life measure for surgery for prolapse, incontinence, and mesh complications
- Georgina Jones, Kirsty Budds, Danielle Musson, Anne-Marie Bagnall, oral poster, Redefining surgical success: what matters to women undergoing surgery for pop, sui and mesh complications
- Georgie Forshall, Rhys Turner-Moore, Georgina Jones, oral poster, what are the concerns and goals of younger women with prolapse? Evidence from ePAQ-Pelvic Floor free-text data and qualitative interviews
National PROMs Research Conference 2026 (Sheffield)
- Tim Pickles, oral, The Children’s Attitude to Grief (CAG) scale: interim results from Rasch measurement theory and confirmatory factor analyses
- Georgina Jones, Mollie Price, Georgie Forshall, Tim Pickles, Francesca Taylor-Phillips, oral, The development of a PROM to measure the impact of surgery for prolapse, incontinence, and mesh complications
- Georgie Forshall, Georgina Jones, oral, A Patient-Reported Outcome Measure for Caesarean Scar Disorder (CSDi): A Qualitative Interview Study to Establish Content Validity and Inform Item Development
Winner of the New Investigator Oral Presentation Prize.
- Tim Pickles, Danielle Musson, Georgina Jones, poster, A systematic review of Patient Reported Outcome Measures for Lupus-specific health-related Quality-of-Life following COSMIN guidelines
- Francesca Taylor-Phillips, Georgie Forshall, Mollie Price, Cat Brooke, Georgina Jones, poster, A qualitative interview study to identify potential barriers and facilitators to implementation of the APPRAISE PROM
- Georgie Forshall, Tim Pickles, Francesca Taylor-Phillips, Georgina Jones, poster, The development of the first adenomyosis-specific quality of life patient-reported outcome measure
Publications
2026
- Francesca Taylor-Phillips, Alicia O'Cathain, Janice Connell, Mollie Price, Cat Brooke, Swati Jha, Stergios Doumouchtsis, Thomas Gray, Stephen Radley, Victoria Fisher, Georgie Forshall, Georgina Jones. A qualitative study to inform the development of a new quality of life measure for surgery for prolapse, incontinence and mesh complications. Frontiers in Global Women’s Health. 2026;7:1643835
- Michal Pruski, Robert I Palmer, Tim Pickles, Kathleen L Withers. A Guide to Understanding and Analysing PROMs Scores in Wales. Patient Related Outcome Measures. 2026;16(0):343-53
- Georgie Forshall, Kirsty Budds, Victoria Fisher, Swati Jha, Thomas G Gray, Stergios K Doumouchtsis, Anne-Marie Bagnall, Georgina Jones. Patient-Reported Outcome Measures Used to Assess Surgical Interventions for Pelvic Organ Prolapse, Stress Urinary Incontinence and Mesh Complications: A Scoping Review for the Development of the APPRAISE PROM. BJOG. 2026;133(2):218-27
- Georgina Jones, Mollie Price, R Smith, Christina Kent, Leanne Staniford, Francesca Taylor-Phillips, Brendan Grough, Anand Deva. ‘It takes you to the limit’: a qualitative study of women presenting with systemic symptoms associated with breast implants (SSBI). Psychology & Health. 2026;1–22.
Collaborators
