Living with Lewy Body disease

Current and recent funded research and evaluation

Lewy Body Disease is the second most common form of neurodegenerative dementia.

Upwards of 15% of people with dementia are living with dementia with Lewy Bodies.

Funded by a UKRI Catalyst Award, and in collaboration with international Lewy Body Disease patient advocacy groups, and Lewy Body Society, this project co-developed 6 videos to promote the experience of living with Lewy Body. These videos are as follows:

  1. Living with Lewy Body Dementia: Diagnoses and Living Well [3-minute video] - with international Lewy Body advocate Chris Maddocks
  2. Lewy Body Dementia and Long-term care [3-minute video] - with author and consultant, Danuta Lipinska
  3. The Importance of Diagnoses and Lewy Body Dementia [3-minute video] - with Dr Joe Kane, Psychiatrist
  4. Lewy Body Dementia: Peer Support and Living with Lewy Body Dementia [3-minute video] - with Kevin Quaid, Author and international Lewy Body advocate
  5. Living with Lewy Body Dementia: Fitness, Health and Wellbeing [3-minute video] - with Naomi Gleeson
  6. Key symptoms of Lewy Body Dementia [3-minute video] - with Rachel Thompson, Admiral Nurse

For further information on Lewy Body disease, please visit Lewy Body International.

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Funder: UK Research and Innovation Catalyst Award

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